This isn't part of my health blog.....it's just being a proud Mama!
Weeeeee're back......a long drive = 11 hours.
We began our trip down to South Carolina on, Saturday, Dec. 14th, leaving our house at 10:45 AM with snow falling. It had just begun a short time before.
We took the 'scenic route'....PA = 33, 78 to 81, through Maryland, West Va., Va, NC and Columbia, SC....it snowed all the way down through majority of NC then turned to rain until we pulled into the parking lot of the Hampton Inn in SC. Arriving at 10 PM.
We stopped just a few times, to stretch our legs or one may even say = to pee....and get gasoline (which we filled up twice).
Lots of trucks on that route and it's only a two lane highway with the speed limit changing all the time (on the 'same' roads!)...55, 60, 65 and 70 mph. We didn't see any police cars on our way down (the weather was really bad!) Road conditions were fine as we were able to drive the speed limits. The trucks were always trying to pass another truck - which took forever for them to get over! We did stop at an Arby's (I think) with 3 hours to go. Charlie needed to eat something other than crackers and his bottled water.
Upon arrival in Columbia, I called Sam to find out 'exactly' how to get to the hotel. We did really well so far and I didn't want it to take another hour by getting lost. With phone in hand - she drove along with us - giving us great directions! The only place where we actually got lost was getting or I should say 'finding' the parking lot.
The hotel is beautiful and we actually didn't book it for Saturday night thinking we'd stop on our way down...but with the tempter reading 35 we didn't want to chance the roads freezing up - so we decided to call the hotel we were staying in to see if they had a room. Luckily they did and that was the last room they had available...they had 4 weddings and with the university graduation they were booked. We were able to keep the same room for the rest of our stay (which was actually an upgraded room!)
Samantha drove to the hotel to see us and stayed for a few minutes. She and Charlie went to one of the bars there (there is one bar after another on the street that our parking lot entrance was)....tons of young kids walking to them......something we are definitely not use to = seeing all those young kids walking in the streets to get to their bar of choice.
Sunday, Dec. 15th - it was COLD!!! a mere 45 degrees and something that we would call a small heat wave! but the sun wasn't out so it was quite chilly. The hotel has a complementary breakfast - thinking it was just coffee/tea and donuts....it was a full course breakfast buffet!! Juice bar, fresh fruit, boxed cereal, eggs, sausage, bacon, bread for toasting, bagels, donuts, muffins, biscuits, oatmeal, and waffles (that you make yourself) and of course ALL condiments to go along with it. (I'm sure there was more to eat but that's all I can remember. and each day they put out a different type of eggs).
While we waited for Sam to come, Charlie and I walked the 'main street'....hardly any cars out on an early Sunday morning....and no stores were opening until 12 noon, so we just window shopped. If we would have walked one more block up from the hotel we would have seen the capital building of SC. One of the bars has a very large Cock in the parking lot that we took a photo with. Charlie had his camera (which we didn't realize when we brought it that it needed fresh batteries). So, we were only able to get two photo's. A women that was driving saw us taking pictures and stopped to have her photo taken....that's when we realized our camera wasn't working...when she took a photo of Charlie and I and nothing happened.
Sam and I walked through the university campus (not the entire part but majority of it - or until I got tired of walking!). Charlie waited in the hotel for his Dad to drive up from Florida. Samantha was going to make us dinner at her apartment so after our walk and DRIVE around the rest of the campus (which is the entire city of Columbia) we went food shopping, to pick up a few things for dinner.
While we were unpacking our car, Charlie realized he forgot to bring his dress shirt and jacket! (he left it hanging in our closet at home)....so while food shopping we stopped to pick up a 'cheap' shirt...which was really cheap! and I actually picked up the wrong size! which turned out good because there was NO way he was going to wear this bright red shirt that Sam and I chose for him!!!
Charlie and his Dad joined us at her apartment. She made a London broil with baked potatoes, (she had some mashed potatoes leftover which she re-heated), onions and mushrooms, asparagus, salad and Italian bread. I picked up a small cheesecake (which was delicious!).....Dinner was great! Samantha is a very good hostess! Although we didn't have a table to sit at - we used her end and cocktail table to cut our meat and place our plates.
Samantha's boyfriend, Paul wears Large shirts = NOT for the reason that Charlie does!!! which she emphasized!!! So Charlie was able to borrow a shirt rather than just wearing his Columbia sweatshirt or plain sweater for her graduation.
Monday, Dec. 16th - SUN was out! still a little chilly in the morning as there was frost on the cars....Ate breakfast and by the time Sam stopped by the temp was heading up to the high 50's....a definite heat wave!!! No coats required!!!! Sam was to be at the stadium at 1:30 and it actually began at 3:30. The hotel was perfectly chosen for us (by Sam) so we were able to walk to this stadium. Turned out great as people were coming and there was a lot of traffic!!! Sam met us inside (thank goodness for cell phones! - so easy to FIND someone). One of her roommates embellished her cap so we would be able to find her sitting with the other graduates. She put the 'state of NJ' on it....cute! But I still wasn't able to see her! When we sat down, I called her asking her to stand up so we could see her but it was at the last minute - she stood up and Charlie and Paul saw her but I didn't....I kind of knew where she was sitting but - I don't know - my eyes aren't as good as they could be (which the eye doctor said my script is perfect).....
As they began the ceremony, all graduates were already sitting and the procession was of the university....I got a lump in my throat (and even now as I write this)....memories of my baby graduating pre-school, kindergarten, elementary and high school just took over and if no one was around - I would have balled my eyes out...but I held it in and asked Charlie for his handkerchief! with some tears just running down the side of my cheeks and my nose running....finally I pulled myself together. I really didn't think this would 'hit me' as it did.....my baby girl.....now a grown woman with such accomplishments and so much more ahead of her.
I felt the same way with Nicholas when he graduated (my first born!)....I didn't attend Paul's graduation but did watch it on line and cried then too! (of course that was in the privacy of my room and I was able to 'let loose')......Any mother reading this - knows exactly what I was feeling!
After taking some photos we walked back to the hotel and Charlie and Dad went to her apartment to pack up some of her things (I didn't go so they had room in the back seat to put majority of what they could squeeze in).....we went out to dinner at this great place (which Sam had made reservations for). Along with Sam were her two roommates (LynnLee and KT), Paul and Charlie, Dad and myself. LynnLee drove her mini van which was great as we all fit in. Her roommates are very nice too...made you feel like you knew them forever. The restaurant was....I forget what you actually call it....Brazilian......they had a salad bar which included: all types of greens, rice, beans, all toppings, salmon, shrimp, mashed potatoes, cheeses, chicken salad and even some cold cuts...then they came along with sticks of all different meats that they would slice in front of you and you would take it with these prongs....you also had a card - one side was red (to stop serving) and the other side was green (to continue offering me all types of meats). You name it - they served it. So much food!!! The girls even made sure they had room for their dessert!! Such an enjoyable evening - day!!!!
Went back to the hotel (just Sam and Paul). Sam asked me to fix Paul's haircut.....LynnLee stopped back with a pair of hair cutting scissors (not the real professional pair but they did cut hair)....He put the shirt on that Charlie wore (Paul's shirt) so the hair would fall onto it.....I 'blended' it more than really cut it...although it was a little shorter than he has been use to.....saying the cut he had was really bad! He looked so much better when I was done - cleaned up looking.
They stayed for a while then headed out. Paul had worked the night before and had to work the following day...so he was a little tired. Very nice gentleman....but I wouldn't expect anything less from Samantha....she does know how to choose her friends.
Tuesday, Dec. 17th - after eating (the great, delicious breakfast) and Sam stopping by once more...we heated out. Charlie's Dad was going up to his daughter (Cathy's house) in Salem, SC (about a 2/3 hour drive). Charlie's Dad is 86 years old and does great! Driving alone, he has does have his company = a Garmen!! which he loves!!! Took him right to the hotel and then Sam programmed it to Cathy's house.
Sun was out, temperature was 54 degrees at 10 am.....In the car and driving home at 10:30 am.....I had heard the weather forecast = SC was to get into the 60's with no clouds....NJ was suppose to have snow.....did I say 'suppose'.....
Driving through NC, we stopped at a rest area, temp was 60 and really beautiful!.....as we proceeded onto VA, just passing through Roanoke....you could see the dark clouds in the distance. I called Sam asking her to check the weather map to see where the snow was (knowing what we hit on our way down!) Reading the weather map she said it looked like we just missed it as it was beginning in Roanoke to snow and where we were - she said it looked like we were in the 'eye' of the storm with it being around us and we were able to drive in the 'clear' part all the way up through Maryland.
The car (outside temp) registered 59 degrees up to Maryland when it was about 37 with some snow. Road were clear! We stopped to get a quick bite in Maryland (knowing we had 4 hours more to drive).....the snow wasn't bad (on the road) until we got onto rt.80 in Stroudsburg. The roads were dry and clear but you knew it snowed as the side roads (seeing them from the highway) were slightly covered and some car lots had cars covered in snow.
and we GOT STUCK IN OUR DRIVEWAY!! Could only make it up halfway! There seems to be a foot of snow! 12 inches!!! The driveway had been plowed but our neighbors used their snow blower to clean it a bit more knowing we'd be home.
================
Donnie (our neighbor) stayed at our house at night for our pets....Joni and Don helped out while Donny was at work. When we got stuck, Donny heard the dogs barking so he let them out.....they barked at us - not knowing who we were!!! When they finally realized - they were so happy to see us.
Donnie and Charlie went out to get the car up the driveway. Thank goodness for Donnie...not only did he help Charlie shovel the driveway to get the car up into the garage but he also helped him bring in a few things (like Sam's TV) from the car.
Joni and Don are the best neighbors! and have the best kids! (too bad they will be moving to Texas!!!). Don tried cleaning our driveway but in the dark and it being so steep in that one bend - he cleaned it as best he could = which was greatly appreciated!!!!
============
All in all, expecting some really interesting things to happen (as they have been with our vacations)...it went quite well = maybe because it really wasn't a vacation......????
============
A long drive and being that I am on the chemo pill and just finishing with radiation (I never knew if I could go down without stopping) or wondering if I'd feel okay. My symptoms have been fine....minor....but never knowing if they'd change.
I'm glad Sam will be coming home. I don't know if I'd want to do that drive again. IF we do = it would be in a motor home!! Someplace I could walk around in while driving!
Glad I was able to walk her campus. I wasn't really impressed with it....I think it was due to the dreary day. Cold, not many leaves on the trees and no kids walking around = a bit desolate. While in the stadium for the graduation they had a photos of the campus - sunny day, all the leaves were on the trees and kids were walking around......made a big difference! I can see why Sam wanted to go there!
I am so blessed (being as sick as I am - on the inside and not really looking like I'm ill) that God gave me this time to enjoy being able to do this. The strength to carry on and fight this disease.
One thing I have learned...and hope it continues....The woman that gave the commencement address said = don't be afraid to leave your comfort zone....if you do, you'll miss out on a lot of things........Hopefully that will 'stick' in my mind.....I HAVE to begin living OUT of my comfort zone! Time for me to actually do things that I haven't....baby steps.....now I have to make plans with our friends and actually go to dinner with them....but I have to do it in 'baby steps'!!!! ==hopefully the newly alumni graduates heard the same thing = don't be afraid to leave your comfort zone (of course she was telling them for their business opportunities).
Wednesday, December 18, 2013
Tuesday, December 10, 2013
Tuesday, December 10, 2013
Wahoo! I'm done with radiation! Yesterday was my 33rd and final day. With the ice - I was a little delayed in getting there. Charlie was driving and when we went to leave (my normally scheduled time) - the driveway was a sheet of ice. I called to see if I could re-schedule -- by hook or crook, I was GOING!!! New time: 12 noon and we were there!
Going down the driveway was still icy and with Charlie's pick up truck - sliding down sideways, kind of took 'our' breath away....he is a great driver - he was able to straighten out the truck and continue on! It felt like 10 minutes to get down the driveway but in reality it was probably a minute. We took a breath when we 'stopped' at the bottom (without sliding into the road and never knowing if there is a car coming!)
Had my treatment then saw the doctor....They want to see me in a month, just for a check up....it's okay as I still have to go back for my CBC's. I'll just make sure they are scheduled for the same day and time.
I also spoke with Dr. May's nurse - to find out about continuing on my chemo pill....The dosage has changed. I will continue taking 2,000 mg. of Xeloda until the end of this week....then I don't take any for the next week....then I increase my dosage to 1,150 morning and evening - giving me a total of 2,300 per day - two weeks on, one week off.
I have a scheduled CBC appointment for this week on Friday....then the next one is....I think, the following week...but I may end up canceling that as I won't be on the chemo pill that week.....another question to ask when I go on Friday.
No bells were rung, just a congratulations when my treatment was finished. Doesn't matter - I'm happy that I don't have to keep going. Even though the six weeks seems to have flown by, it was still getting up every weekday and leaving the house. Thank goodness in that time frame there was only two days that the weather was strange.
Charlie and I went to Newton to do some shopping after the treatment (especially thinking that the driveway was still a little frozen). We picked up two gifts to donate for a girl and a boy then stopped at Shop Rite to pick up some lunch/dinner food.
Thank you ALL, for keeping me in your prayers. Your continued support is truly appreciated.
Merry Christmas to all!
Going down the driveway was still icy and with Charlie's pick up truck - sliding down sideways, kind of took 'our' breath away....he is a great driver - he was able to straighten out the truck and continue on! It felt like 10 minutes to get down the driveway but in reality it was probably a minute. We took a breath when we 'stopped' at the bottom (without sliding into the road and never knowing if there is a car coming!)
Had my treatment then saw the doctor....They want to see me in a month, just for a check up....it's okay as I still have to go back for my CBC's. I'll just make sure they are scheduled for the same day and time.
I also spoke with Dr. May's nurse - to find out about continuing on my chemo pill....The dosage has changed. I will continue taking 2,000 mg. of Xeloda until the end of this week....then I don't take any for the next week....then I increase my dosage to 1,150 morning and evening - giving me a total of 2,300 per day - two weeks on, one week off.
I have a scheduled CBC appointment for this week on Friday....then the next one is....I think, the following week...but I may end up canceling that as I won't be on the chemo pill that week.....another question to ask when I go on Friday.
No bells were rung, just a congratulations when my treatment was finished. Doesn't matter - I'm happy that I don't have to keep going. Even though the six weeks seems to have flown by, it was still getting up every weekday and leaving the house. Thank goodness in that time frame there was only two days that the weather was strange.
Charlie and I went to Newton to do some shopping after the treatment (especially thinking that the driveway was still a little frozen). We picked up two gifts to donate for a girl and a boy then stopped at Shop Rite to pick up some lunch/dinner food.
Thank you ALL, for keeping me in your prayers. Your continued support is truly appreciated.
Merry Christmas to all!
Friday, December 6, 2013
Friday morning, December 6th
It's always nice to receive great news from a doctor! I went for my eye exam yesterday and I was so happy to walk out of there knowing that there is nothing wrong with my eyes! That doctor looked and looked and looked some more but just couldn't find anything wrong! He had me a little nervous when he checked one more time! I haven't had my pupils dialated in a few years and didn't remember how long it actually took to be able to 'see' again. Thank goodness it was a cloudy day.
Before my eye appointment I had gone for radiation #31 and asked the technician the things I had asked before but couldn't remember a word that was said due to me dwelling on 'another 5 days of radiation'......
I asked if this radiation (next three days) is stronger than the others (as they call it something else = that again, I can't remember). Her reply was 'no'...it's the same amount of radiation but concentrated in the area where the cancer was originally found. Then I asked, how does this end...she said that on Monday (my last treatment) I will meet with the doctor and she will go over 'discharge papers' and tell me what things I should do and/or look for and also set up a follow up appointment. She suggested (due to me saying that I couldn't remember a word said) that I bring a pad along with me to write things down. Eeeks...will there be that much to remember???? The other tech said to bring a 'recorder' as she did that for her schooling......oh my, I can't believe there will be that much that I have to look for!!!
A dreary Friday morning....and that darn cat kept coming into my bedroom every hour since 2:30 this morning!!! I totally ignored her each time but with her meowing, it's like having a baby in the house where you just wake up hearing her. I didn't get too much sleep. I finally got up about 7:20 and she was back on her bed looking like she didn't want to be disturbed. Went downstairs and put out 'fresh' wet food and she was happy AND right now, she's still outside! Yesterday she was in and out all day - guess she enjoys the warmer weather - rain or shine.
Before my eye appointment I had gone for radiation #31 and asked the technician the things I had asked before but couldn't remember a word that was said due to me dwelling on 'another 5 days of radiation'......
I asked if this radiation (next three days) is stronger than the others (as they call it something else = that again, I can't remember). Her reply was 'no'...it's the same amount of radiation but concentrated in the area where the cancer was originally found. Then I asked, how does this end...she said that on Monday (my last treatment) I will meet with the doctor and she will go over 'discharge papers' and tell me what things I should do and/or look for and also set up a follow up appointment. She suggested (due to me saying that I couldn't remember a word said) that I bring a pad along with me to write things down. Eeeks...will there be that much to remember???? The other tech said to bring a 'recorder' as she did that for her schooling......oh my, I can't believe there will be that much that I have to look for!!!
A dreary Friday morning....and that darn cat kept coming into my bedroom every hour since 2:30 this morning!!! I totally ignored her each time but with her meowing, it's like having a baby in the house where you just wake up hearing her. I didn't get too much sleep. I finally got up about 7:20 and she was back on her bed looking like she didn't want to be disturbed. Went downstairs and put out 'fresh' wet food and she was happy AND right now, she's still outside! Yesterday she was in and out all day - guess she enjoys the warmer weather - rain or shine.
Tuesday, December 3, 2013
Tuesday, December 3, 2013
I left the house 15 minutes earlies today....I had two appointments at the same time = 10:30 = for radiation and then CBC....
I was called in as soon as I changed and the technician said it was going to be a little longer = having 5 days to go, they do more x-rays and something else....
WHAT!!! 5 more days!!! Are you kidding me?!!! I'm suppose to have my last radiation treatment tomorrow (Wednesday the 4th!)....I'm so frustrated but not voicing my opinion other than saying that I thought tomorrow was my last day....they snuck in another week!!!
If you do the math = 6 weeks of radiation at 5 times a week = 30 days NOT 35 days!
I saw the radiation doctor afterwards...before I talk to her they take your vitals...blood pressure and weight. Needless to say, my blood pressure was HIGH!! The nurse said = today is day 29....
Doctor comes in and I asked her why I had to go another 5 days. Actually she walked in and asked if I was happy coming back....I looked strangly at her....I never missed a day! Are you looking at the right person's chart? she showed me my photo and said yes. Told her that I was even here on Sunday but had Thursday (thanksgiving) and Friday off....maybe because I actually haven't seen 'her'...I've saw another doctor two weeks in a row.
I mentioned about the extra 5 days....she said it's only 3 more. A total of 33 days....I still can't figure this one out....How they snuck that extra 3 days on me!!! I am making sure that my last day will be on Monday the 9th!!!
Sorry, can you tell I'm a little frustrated?!!
I changed back into my street clothes and then went for CBC. I asked the nurse to take my vitals again (as I calmed down a little). My blood pressure was good...normal - compared to what it was 15 minutes before!
I arrived at 10:15 ish....and I was walking out the door at 11:25.
My skin color is a reddish brown and under my arm where one stitch had broken off is where there is a little blister. They don't seem concerned; as long as it's not oozing. I just keep putting the Aquophor on it after the treatment and then before bed.
Thursday I have the appointment with at the eye doctor....they called to remind me of my appointment...I told them I maybe a few minutes late as I have radiation which I hadn't expected....no problem.....
===========
I finished putting the lights and decorations on our Christmas Tree. I'm still in the process of putting all the other stuff out and around! Started with my Santa's... Things I have on my mantel's need to come off, but I don't have boxes to put them in. Charlie loves to burn the boxes we have from deliveries....
I was called in as soon as I changed and the technician said it was going to be a little longer = having 5 days to go, they do more x-rays and something else....
WHAT!!! 5 more days!!! Are you kidding me?!!! I'm suppose to have my last radiation treatment tomorrow (Wednesday the 4th!)....I'm so frustrated but not voicing my opinion other than saying that I thought tomorrow was my last day....they snuck in another week!!!
If you do the math = 6 weeks of radiation at 5 times a week = 30 days NOT 35 days!
I saw the radiation doctor afterwards...before I talk to her they take your vitals...blood pressure and weight. Needless to say, my blood pressure was HIGH!! The nurse said = today is day 29....
Doctor comes in and I asked her why I had to go another 5 days. Actually she walked in and asked if I was happy coming back....I looked strangly at her....I never missed a day! Are you looking at the right person's chart? she showed me my photo and said yes. Told her that I was even here on Sunday but had Thursday (thanksgiving) and Friday off....maybe because I actually haven't seen 'her'...I've saw another doctor two weeks in a row.
I mentioned about the extra 5 days....she said it's only 3 more. A total of 33 days....I still can't figure this one out....How they snuck that extra 3 days on me!!! I am making sure that my last day will be on Monday the 9th!!!
Sorry, can you tell I'm a little frustrated?!!
I changed back into my street clothes and then went for CBC. I asked the nurse to take my vitals again (as I calmed down a little). My blood pressure was good...normal - compared to what it was 15 minutes before!
I arrived at 10:15 ish....and I was walking out the door at 11:25.
My skin color is a reddish brown and under my arm where one stitch had broken off is where there is a little blister. They don't seem concerned; as long as it's not oozing. I just keep putting the Aquophor on it after the treatment and then before bed.
Thursday I have the appointment with at the eye doctor....they called to remind me of my appointment...I told them I maybe a few minutes late as I have radiation which I hadn't expected....no problem.....
===========
I finished putting the lights and decorations on our Christmas Tree. I'm still in the process of putting all the other stuff out and around! Started with my Santa's... Things I have on my mantel's need to come off, but I don't have boxes to put them in. Charlie loves to burn the boxes we have from deliveries....
Friday, November 29, 2013
Friday, Nov. 29th
What a great feeling NOT to have to go to Sparta for radiation!!! Tomorrow (Sat.) and Sunday OFF!!! Back on Mon., Tues., and Wed....if I counted right would be my last, 30th day!
Keeping myself busy....Charlie was asked to work today (usually just works Sat., and Sun's). Before leaving I asked him to bring up or down the artificial Christmas tree....the past few years we've had a fresh one but I have too many ornaments and wasn't able to use all of them and the type of tree we had, couldn't 'hold' most of them as I think they may have been just a little too heavy. Unless I put them 'inside' the tree - they might stay but then you can't see them.
Charlie found the tree (right where he put it last year) in the attic.....but couldn't find the lights! When I put the tree together I put the lights on each row of branches (to give it depth)....so out I went to buy some lights....I have 4 boxes of 300 - I hope that's enough. I bought them right in town and they have smaller boxes = just in case I need a few more I know I can get them close by.
We had an enjoyable Thanksgiving Day = missing Sam too. I made two desserts on Wednesday night = an apple pie and this chocolate lasagna (made with layer of crushed oreo cookies, chocolate pudding and cool whip) and on Thursday I made some appetizers = deviled eggs, shrimp, stuffed mushrooms and spinach dip. I put it out when Nick came about 2:30.
Thinking a 12 lb. turkey would take about 3 1/2 hours to bake, I put it in the oven at noon time.....I had seen on the TV show (The Chew) to put a carrot, one piece of celery and a whole onion cut in half, inside the cavity to keep the bird moist and some added flavor....I'm glad I did that because the turkey wasn't done until 5:30!!! Thank goodness they had eaten before!!! I also made stuffing w/sausage and added some dried cranberries amongst other things; acorn squash stuffing (minus the bread cube); twice baked pototoes for Charlie and Nick; Paul and I had sweet potatoes; and I made artichokes!
6:30 = the dinner was great....the turkey was moist!!! I thought it would have been totally dried out!!! and dessert was even better!
I can't believe how fast this month (November) went....before we know it, it will be 2014!!!
Hope you all had a very happy Thanksgiving Day!
Keeping myself busy....Charlie was asked to work today (usually just works Sat., and Sun's). Before leaving I asked him to bring up or down the artificial Christmas tree....the past few years we've had a fresh one but I have too many ornaments and wasn't able to use all of them and the type of tree we had, couldn't 'hold' most of them as I think they may have been just a little too heavy. Unless I put them 'inside' the tree - they might stay but then you can't see them.
Charlie found the tree (right where he put it last year) in the attic.....but couldn't find the lights! When I put the tree together I put the lights on each row of branches (to give it depth)....so out I went to buy some lights....I have 4 boxes of 300 - I hope that's enough. I bought them right in town and they have smaller boxes = just in case I need a few more I know I can get them close by.
We had an enjoyable Thanksgiving Day = missing Sam too. I made two desserts on Wednesday night = an apple pie and this chocolate lasagna (made with layer of crushed oreo cookies, chocolate pudding and cool whip) and on Thursday I made some appetizers = deviled eggs, shrimp, stuffed mushrooms and spinach dip. I put it out when Nick came about 2:30.
Thinking a 12 lb. turkey would take about 3 1/2 hours to bake, I put it in the oven at noon time.....I had seen on the TV show (The Chew) to put a carrot, one piece of celery and a whole onion cut in half, inside the cavity to keep the bird moist and some added flavor....I'm glad I did that because the turkey wasn't done until 5:30!!! Thank goodness they had eaten before!!! I also made stuffing w/sausage and added some dried cranberries amongst other things; acorn squash stuffing (minus the bread cube); twice baked pototoes for Charlie and Nick; Paul and I had sweet potatoes; and I made artichokes!
6:30 = the dinner was great....the turkey was moist!!! I thought it would have been totally dried out!!! and dessert was even better!
I can't believe how fast this month (November) went....before we know it, it will be 2014!!!
Hope you all had a very happy Thanksgiving Day!
Tuesday, November 26, 2013
Tuesday, Nov. 26th (day 26 out of 30)
Had my CBC drawn today = all numbers are very good! Maybe the supplements are helping!
Radiation: On Friday of last week I noticed under my arm began getting 'red/irritated'....saw the doctor and she said to keep putting the Aquaphor on it (after treatment)....still on the red side but no blistering. I go one more day this week = then have 4 days off! Wahoo!!! the joys of these little things in life!
Saw Dr. May too...right now I'm taking a total of 4 (500 mg each) Xeloda pills a day. She wants me to stop taking them for several days after I'm finished with radiation and then to begin on that Monday taking more....6 pills a day. 3 in the morning (I have to have a new script made up as she wants me to take 2 - 500 mg and 1 - 150 mg) and then 3 at night and take them for two weeks ON and then one week OFF....but she also wants me to go for CBC once a week.
In three months time, from the beginning of radiation till the 3 months is over, she suggests a PET scan to see what's going on and decide what's next.
Dr. May said that the symptoms may begin to 'set in'....peeling of the soles and palms, mouth sores, diarrhea, and maybe one or two other things.......and here I thought I was doing so very well!!!!! Prayers to continue feeling the same way!!!!
Charlie drove me today - thinking the roads were going to be bad....but they were fine! The weatherman can make you crazy!!! They really make you paranoid! see a few snow flakes and you think we'll have a blizzard!!! I went food shopping about 2 and it was raining......
Having a new well pump is a real pain!!! The water is still coming out with a tinge of 'brown' color and an odor of bleach. Still drinking bottled water (including our pets)even though the plumber said Monday should be okay....when I see a ting of brown - I'll wait!!!!
With this = I'm afraid to begin baking/cooking for Thursday.....I hate to use too much bottled water not knowing how much we'd have left to drink....what gets done will be done....what doesn't = no one will know!!!!
Thank you again, for your continued support and prayers. Happy Thanksgiving to All = we really do have a lot to be thankful for! Friends like you! Family like you! and all the other blessings we have.
Radiation: On Friday of last week I noticed under my arm began getting 'red/irritated'....saw the doctor and she said to keep putting the Aquaphor on it (after treatment)....still on the red side but no blistering. I go one more day this week = then have 4 days off! Wahoo!!! the joys of these little things in life!
Saw Dr. May too...right now I'm taking a total of 4 (500 mg each) Xeloda pills a day. She wants me to stop taking them for several days after I'm finished with radiation and then to begin on that Monday taking more....6 pills a day. 3 in the morning (I have to have a new script made up as she wants me to take 2 - 500 mg and 1 - 150 mg) and then 3 at night and take them for two weeks ON and then one week OFF....but she also wants me to go for CBC once a week.
In three months time, from the beginning of radiation till the 3 months is over, she suggests a PET scan to see what's going on and decide what's next.
Dr. May said that the symptoms may begin to 'set in'....peeling of the soles and palms, mouth sores, diarrhea, and maybe one or two other things.......and here I thought I was doing so very well!!!!! Prayers to continue feeling the same way!!!!
Charlie drove me today - thinking the roads were going to be bad....but they were fine! The weatherman can make you crazy!!! They really make you paranoid! see a few snow flakes and you think we'll have a blizzard!!! I went food shopping about 2 and it was raining......
Having a new well pump is a real pain!!! The water is still coming out with a tinge of 'brown' color and an odor of bleach. Still drinking bottled water (including our pets)even though the plumber said Monday should be okay....when I see a ting of brown - I'll wait!!!!
With this = I'm afraid to begin baking/cooking for Thursday.....I hate to use too much bottled water not knowing how much we'd have left to drink....what gets done will be done....what doesn't = no one will know!!!!
Thank you again, for your continued support and prayers. Happy Thanksgiving to All = we really do have a lot to be thankful for! Friends like you! Family like you! and all the other blessings we have.
Friday, November 22, 2013
Friday morning, Nov. 22nd
50th anniversary of President Kennedy's fatal shooting.
At this time in my life I feel I should dwell on the positive things.....I have a roof over my head, heat, food in the refrigerator, electric, a comfortable bed to sleep in, my Kindle, my computer, and a loving husband - BUT NO water!!! Well, we do have 'some' water. A cold shower that drizzles is better than nothing....still leaving some soap on my body...but at least I'm clean and smell good! A dishpan in the sink with water so I can wash my hands during the day. I am thankful for things and one thing that I've known for a while (since our long lasting power outages and no generator)...I am NOT a pioneer woman!!! and I DON'T want to be either!!! I LOVE the little extra's in my life! and I want them back!!!
We got our call before 8 AM this morning that the plumber is coming = to fix or install our water pump (in the ground) shortly! Wahoo!!! The little things in life that give me/us pleasure.
I'll be able to use my dishwasher for the first time - not cooking and using some utensils and a few dishes are now waiting in the dishwasher to begin the wash cycle. I'd better read the manual to see how to start it! Since we replaced this dishwasher I've been doing them by hand - not bad considering I use more pots and pans than dishes...as long as I have to wash them, what's a few dishes, glasses and silverware.
Radiation is going well...today is day 23 (out of 30)...I wasn't going to count 'days' but being this close to the end I've changed my mind.
I did notice yesterday (the day AFTER I saw the radiation doctor) that under my arm is a little irritated (looking red). I hope she's around so she can suggest or prescribe some medication to put on it. Now to hope she doesn't' say not to use deodorant! That would be very hard!!!!
Thank you for our friends and neighbors that have offered their hot showers....but with everything I use = I'd need to pack a suitcase just to take a shower. Roughing it is a little hard but I can handle it for a few days = not enjoying it is another story.
Just in case I don't blog in the next few days - I'd like to wish you all a very Happy Thanksgiving and yes, I am very thankful for the things, people and close friends in my life...and most of all for my loving family! God Bless You All!
At this time in my life I feel I should dwell on the positive things.....I have a roof over my head, heat, food in the refrigerator, electric, a comfortable bed to sleep in, my Kindle, my computer, and a loving husband - BUT NO water!!! Well, we do have 'some' water. A cold shower that drizzles is better than nothing....still leaving some soap on my body...but at least I'm clean and smell good! A dishpan in the sink with water so I can wash my hands during the day. I am thankful for things and one thing that I've known for a while (since our long lasting power outages and no generator)...I am NOT a pioneer woman!!! and I DON'T want to be either!!! I LOVE the little extra's in my life! and I want them back!!!
We got our call before 8 AM this morning that the plumber is coming = to fix or install our water pump (in the ground) shortly! Wahoo!!! The little things in life that give me/us pleasure.
I'll be able to use my dishwasher for the first time - not cooking and using some utensils and a few dishes are now waiting in the dishwasher to begin the wash cycle. I'd better read the manual to see how to start it! Since we replaced this dishwasher I've been doing them by hand - not bad considering I use more pots and pans than dishes...as long as I have to wash them, what's a few dishes, glasses and silverware.
Radiation is going well...today is day 23 (out of 30)...I wasn't going to count 'days' but being this close to the end I've changed my mind.
I did notice yesterday (the day AFTER I saw the radiation doctor) that under my arm is a little irritated (looking red). I hope she's around so she can suggest or prescribe some medication to put on it. Now to hope she doesn't' say not to use deodorant! That would be very hard!!!!
Thank you for our friends and neighbors that have offered their hot showers....but with everything I use = I'd need to pack a suitcase just to take a shower. Roughing it is a little hard but I can handle it for a few days = not enjoying it is another story.
Just in case I don't blog in the next few days - I'd like to wish you all a very Happy Thanksgiving and yes, I am very thankful for the things, people and close friends in my life...and most of all for my loving family! God Bless You All!
Tuesday, November 19, 2013
Tuesday, November 19th
Everything is going well.....treatment: just finished week 4!! two more weeks to go!
Had my CBC done this morning, then radiation, then saw the doctor. Tomorrow I get my x-ray and radiation then done for the day.
I will go on Sunday and have four days off - Thanksgiving, Friday, Sat., and Sun...then only 3 days after that!
CBC was good - numbers are still where they should be. Dr. May came in and said to take all 4 chemo pills on a daily basis. I will see her next Tuesday.
===
We were having problems with our water....had the furnace coil cleaned and had a great surge of hot water...then noticed the cold water wasn't as strong flowing through those pipes....Called the plumber and he found that our water heater or was it the water holding tank...keeps running = meaning = we need to get a new pump...the one that is outside - underground!!! And he won't be able to do this until Friday!!!!
He came around dinner time and when he left we ate....then I went to wash the dishes and it's dribbling out of the faucet!!!! How on earth will I be able to take a shower with NO pressure?!!! 3 days!!! I will be totally frustrated!!! Can't do laundry! and very little cleaning that uses water!!! I really need these comforts of home! I am a person that needs these life pleasures!!! I don't like roughing it!!! I enjoy the 'small' pleasures of life! Running water - inside the house! out of every faucet! I'm not asking for much....a roof over my head, running water and heat or air conditioning....oh and electric.......hmmmm, guess I am a glutten - wanting all these 'bare' necessities in my life. This is like living with a power outage and no generator....and we do have a generator but even that's not going to help.................
signing off, frustrated!!!
Had my CBC done this morning, then radiation, then saw the doctor. Tomorrow I get my x-ray and radiation then done for the day.
I will go on Sunday and have four days off - Thanksgiving, Friday, Sat., and Sun...then only 3 days after that!
CBC was good - numbers are still where they should be. Dr. May came in and said to take all 4 chemo pills on a daily basis. I will see her next Tuesday.
===
We were having problems with our water....had the furnace coil cleaned and had a great surge of hot water...then noticed the cold water wasn't as strong flowing through those pipes....Called the plumber and he found that our water heater or was it the water holding tank...keeps running = meaning = we need to get a new pump...the one that is outside - underground!!! And he won't be able to do this until Friday!!!!
He came around dinner time and when he left we ate....then I went to wash the dishes and it's dribbling out of the faucet!!!! How on earth will I be able to take a shower with NO pressure?!!! 3 days!!! I will be totally frustrated!!! Can't do laundry! and very little cleaning that uses water!!! I really need these comforts of home! I am a person that needs these life pleasures!!! I don't like roughing it!!! I enjoy the 'small' pleasures of life! Running water - inside the house! out of every faucet! I'm not asking for much....a roof over my head, running water and heat or air conditioning....oh and electric.......hmmmm, guess I am a glutten - wanting all these 'bare' necessities in my life. This is like living with a power outage and no generator....and we do have a generator but even that's not going to help.................
signing off, frustrated!!!
Saturday, November 16, 2013
Saturday, November 16th
What a great feeling = not having to get up and do EVERYTHING so early in the morning. At least to me, it's early...to others that work on a regular basis/schedule = it would be closer to their lunch time!
Our cat did get me up....she's an outside cat that wants to be an indoor cat until yesterday and today. She can't make up her mind. She got me up to eat and go out (the last few days she eaten and stay inside)....then I was on the computer...then back to bed but couldn't fall asleep (go figure).
Took my time - ate breakfast at a normal time and even put a rump roast in the slow cooker and here I sit at 1:30 just getting ready to go downstairs (although I have been up and down all morning).
Radiation: Quick as a bunny yesterday and then off to Newton. I had an appointment to get my eyes checked. It just a little fuzzy and with Charlie having vision insurance I figured I'd take advantage of it. Went to Marshall's first then off for my appointment to find out that I don't need anything stronger (which is good as I just have these glasses for a little over a year) BUT the insurance that Charlie has is no longer!!! I called him (as he had to work yesterday) and he found out that they still have the vision but under a different provider. Now I have to do paperwork to get my money back, minus the deductable.
While there the optometrist highly suggested that I make an appointment with an opthalmologist. Seems that breast cancer can metastasis to the eye....and he wants the retina checked....I also went on line and it does say that this is a possiblity especially if you feel your eye sight is changing....hmmmm, now something else to worry about!
After I had my treatment, the husband and wife were waiting to talk to me....isn't that cute! I'm in a short time so they really didn't have to wait long. One of the nurses was also handing out homemade crochet scarves as one of her friends enjoys making them and giving them away (it's beautifully made!). I think we pretty much caught up on who's who and we know 'who'! I still can't believe this story! Out of all the people that go there - to be scheduled around the same time....and finding out you know their family.....well, you know what I mean.
That's it...it's a gorgeous day today! I have some windows open to let the fresh air in! Enjoy YOU day/weekend!
Our cat did get me up....she's an outside cat that wants to be an indoor cat until yesterday and today. She can't make up her mind. She got me up to eat and go out (the last few days she eaten and stay inside)....then I was on the computer...then back to bed but couldn't fall asleep (go figure).
Took my time - ate breakfast at a normal time and even put a rump roast in the slow cooker and here I sit at 1:30 just getting ready to go downstairs (although I have been up and down all morning).
Radiation: Quick as a bunny yesterday and then off to Newton. I had an appointment to get my eyes checked. It just a little fuzzy and with Charlie having vision insurance I figured I'd take advantage of it. Went to Marshall's first then off for my appointment to find out that I don't need anything stronger (which is good as I just have these glasses for a little over a year) BUT the insurance that Charlie has is no longer!!! I called him (as he had to work yesterday) and he found out that they still have the vision but under a different provider. Now I have to do paperwork to get my money back, minus the deductable.
While there the optometrist highly suggested that I make an appointment with an opthalmologist. Seems that breast cancer can metastasis to the eye....and he wants the retina checked....I also went on line and it does say that this is a possiblity especially if you feel your eye sight is changing....hmmmm, now something else to worry about!
After I had my treatment, the husband and wife were waiting to talk to me....isn't that cute! I'm in a short time so they really didn't have to wait long. One of the nurses was also handing out homemade crochet scarves as one of her friends enjoys making them and giving them away (it's beautifully made!). I think we pretty much caught up on who's who and we know 'who'! I still can't believe this story! Out of all the people that go there - to be scheduled around the same time....and finding out you know their family.....well, you know what I mean.
That's it...it's a gorgeous day today! I have some windows open to let the fresh air in! Enjoy YOU day/weekend!
Thursday, November 14, 2013
Thursday, November 14th
Sunny, beautiful day outside....was typing a long (not unusal) email to a friend and almost to the end = the power went out!!! Loosing my letter!!!! It went out for a second or two!!! All that typing and this happens! I just hope it doesn't happen again!!!!
The story = to continue from the last post, regarding the older couple....
Remember I mentioned because they take you so fast that you really don't have time to have a 'real' conversation with the other patient....One day I was there and two were in the waiting area (one done and waiting to see the doctor and the other waiting to go in). By the time I was undressed there was only one woman waiting....with that in mind = you get thing in bits and pieces!
Before I begin with this story....Paul had told me about this web site = teeth miridians = which I found very interesting! They show you a chart where there is a tooth/organ relationship!!! If you have a chance - you should use your search engine and view or probably PRINT out one of the charts.....
back to my story....
With this in mind and knowing the husband is a retired cardiologist I thought he and his wife may find this interesting. I made a copy for them and was ready to give it to them yesterday but they never showed up....
Today they were there...the wife, Dorothy, was already having her treatment so I changed and walked into the men's waiting room to give the copies to the man....He told me what was wrong that they didn't show up the previous day and then I handed him this chart....he talked about the dentist he goes to....and then he said the dentist gives them FREE cleanings at least 4 times a year and in turn he gives him tickets to the home Giants games....little stuff is adding up. He also mentioned his last name...and I hadn't really heard what Dorothy said the day before...when he told me his name and remembering that Dorothy said his son was an excellent cook...and he lived in Blairstown (the next town from me)...the name clicked...the town didn't...the great cook did....Turns out his son is our neighbor that lives 1/2 mile down the road. Samantha went to school with the daughter! and had a few breakfasts there after the sleepovers. Samantha said it was like a Las Vegas Buffet!!! So now I really know them!!! What a small world! Dorothy didn't know this yet as she came out and I went in for the treatment! I'm sure they were both laughing when the husband told his wife this! Not only living in the same town - but right down the road!!!
I saw the radiologist doctor today (you are to see them once a week). A good thing that I didn't see her yesterday. this part is a little gross: I noticed after taking my shower that there was a tiny white spot right around my nipple....me the picker that I am, thought it may have been a little soap that didn't rinse off, so I scratched the area....it was a little red right about that too. Now out comes some pus and then it was a little oozy....I mentioned this to the radiology people and they said this happens some times....The doctor didn't seem too concerned...just said to use Neosporin 2 x's a day (after treatment and before bed) and NOT to touch it!! Good grief - the things I CAN'T DO!!! At least I don't have to worry about it - seeing it happened today and saw the doctor too.
Other than that....everything is going well. I UP-ed my chemo pills - now taking 2 in the morning and 1 at night...will do that for two weeks unless I get some symptoms...but I'd have to check with Dr. May first...which I will see her in two weeks.
I still have energy...actually a little more. I've been getting up early - 5:45 AM....I go to the bathroom then back to bed but can't fall asleep....I fall asleep while playing that game - Words With Friends....until the kindle feels like it's falling off my lap which wakes me up....only a few winks of sleep....but I still clean upstairs and if I still have time I'll vacuum the main floor too. The chairs that the dogs sit/lay on always has hair on it!
That's all for now....everything is A-okay! Thank you so much for your continued support and prayers!
The story = to continue from the last post, regarding the older couple....
Remember I mentioned because they take you so fast that you really don't have time to have a 'real' conversation with the other patient....One day I was there and two were in the waiting area (one done and waiting to see the doctor and the other waiting to go in). By the time I was undressed there was only one woman waiting....with that in mind = you get thing in bits and pieces!
Before I begin with this story....Paul had told me about this web site = teeth miridians = which I found very interesting! They show you a chart where there is a tooth/organ relationship!!! If you have a chance - you should use your search engine and view or probably PRINT out one of the charts.....
back to my story....
With this in mind and knowing the husband is a retired cardiologist I thought he and his wife may find this interesting. I made a copy for them and was ready to give it to them yesterday but they never showed up....
Today they were there...the wife, Dorothy, was already having her treatment so I changed and walked into the men's waiting room to give the copies to the man....He told me what was wrong that they didn't show up the previous day and then I handed him this chart....he talked about the dentist he goes to....and then he said the dentist gives them FREE cleanings at least 4 times a year and in turn he gives him tickets to the home Giants games....little stuff is adding up. He also mentioned his last name...and I hadn't really heard what Dorothy said the day before...when he told me his name and remembering that Dorothy said his son was an excellent cook...and he lived in Blairstown (the next town from me)...the name clicked...the town didn't...the great cook did....Turns out his son is our neighbor that lives 1/2 mile down the road. Samantha went to school with the daughter! and had a few breakfasts there after the sleepovers. Samantha said it was like a Las Vegas Buffet!!! So now I really know them!!! What a small world! Dorothy didn't know this yet as she came out and I went in for the treatment! I'm sure they were both laughing when the husband told his wife this! Not only living in the same town - but right down the road!!!
I saw the radiologist doctor today (you are to see them once a week). A good thing that I didn't see her yesterday. this part is a little gross: I noticed after taking my shower that there was a tiny white spot right around my nipple....me the picker that I am, thought it may have been a little soap that didn't rinse off, so I scratched the area....it was a little red right about that too. Now out comes some pus and then it was a little oozy....I mentioned this to the radiology people and they said this happens some times....The doctor didn't seem too concerned...just said to use Neosporin 2 x's a day (after treatment and before bed) and NOT to touch it!! Good grief - the things I CAN'T DO!!! At least I don't have to worry about it - seeing it happened today and saw the doctor too.
Other than that....everything is going well. I UP-ed my chemo pills - now taking 2 in the morning and 1 at night...will do that for two weeks unless I get some symptoms...but I'd have to check with Dr. May first...which I will see her in two weeks.
I still have energy...actually a little more. I've been getting up early - 5:45 AM....I go to the bathroom then back to bed but can't fall asleep....I fall asleep while playing that game - Words With Friends....until the kindle feels like it's falling off my lap which wakes me up....only a few winks of sleep....but I still clean upstairs and if I still have time I'll vacuum the main floor too. The chairs that the dogs sit/lay on always has hair on it!
That's all for now....everything is A-okay! Thank you so much for your continued support and prayers!
Tuesday, November 12, 2013
11-12-13 - today's date......
I forgot to mention this....One of my first treatments an older woman and her husband came in after me, Charlie was with me that day....The man was jovial and the woman was smiling....I didn't realize at the time that she too was going to have radiation treatments.
Because you're in and out you really don't have much time to speak to anyone - unless you or they wait to talk when they are all done.
Yesterday, Monday, I had the chance to actually speak to this woman. She told me she is 82 and her husband is 90 (and still drives!). He is a retired cardiologist and practiced in Newton. This is her 3rd marriage and his 2nd. She has two grown children; male 62 and woman 59...she didn't say anything about grandchildren...but then again we didn't have time to really chat.
Today we had a few more minutes. I mentioned to her something I said to Charlie...looking at them = I feel WE'D be like them in a few years...Charlie always joking and me smiling....she chuckled at that. She told me that her first husband died, second one she divorsed and is happily married to Lucian (or Lucas). His first wife passed away. Her name is Dorothy!!! You should have seen the expression on her face when she asked me my name and I told her.... Such a sweet old lady!
************
Today went well....didn't have to wait too long but long enough to talk to Dorothy! I went for my CBC (blood work) and all my numbers are good. Still taking the chemo pill 2 a day (1 in the morning and 1 at night). Tomorrow (Wednesday) I will begin taking 2 in the morning and 1 at night.
Still feeling fine....a little tired but I know exactly why....Charlie snores! gee, did I mention that before??? Not only with him breathing/snoring in my ear (which really isn't all that loud - until your right next to each other) but the cat loves to wake me early - when it's still dark! Which is before 6 am! We found out that she is now using the kitty litter box in the basement. Charlie put it there to keep the moisture and damp smell by the water tank....Our kitty found it! And here I was wondering why she'd get me up so early and NOT go out = after feeding her! So, I now pet her for a while (while still laying in bed and she's on the floor). She eventually moves back onto her bed by the steps. So here I am - up since before 6...I ended up getting up the second time the cat came meowing in by me which was about 7:30....while Charlie is still snoring away.
Thank goodness I did sleep well all night! until I was able to fall asleep with the snoring and waking up to a meowing cat!
Okay, I'm done complaining and telling my story.....
Because you're in and out you really don't have much time to speak to anyone - unless you or they wait to talk when they are all done.
Yesterday, Monday, I had the chance to actually speak to this woman. She told me she is 82 and her husband is 90 (and still drives!). He is a retired cardiologist and practiced in Newton. This is her 3rd marriage and his 2nd. She has two grown children; male 62 and woman 59...she didn't say anything about grandchildren...but then again we didn't have time to really chat.
Today we had a few more minutes. I mentioned to her something I said to Charlie...looking at them = I feel WE'D be like them in a few years...Charlie always joking and me smiling....she chuckled at that. She told me that her first husband died, second one she divorsed and is happily married to Lucian (or Lucas). His first wife passed away. Her name is Dorothy!!! You should have seen the expression on her face when she asked me my name and I told her.... Such a sweet old lady!
************
Today went well....didn't have to wait too long but long enough to talk to Dorothy! I went for my CBC (blood work) and all my numbers are good. Still taking the chemo pill 2 a day (1 in the morning and 1 at night). Tomorrow (Wednesday) I will begin taking 2 in the morning and 1 at night.
Still feeling fine....a little tired but I know exactly why....Charlie snores! gee, did I mention that before??? Not only with him breathing/snoring in my ear (which really isn't all that loud - until your right next to each other) but the cat loves to wake me early - when it's still dark! Which is before 6 am! We found out that she is now using the kitty litter box in the basement. Charlie put it there to keep the moisture and damp smell by the water tank....Our kitty found it! And here I was wondering why she'd get me up so early and NOT go out = after feeding her! So, I now pet her for a while (while still laying in bed and she's on the floor). She eventually moves back onto her bed by the steps. So here I am - up since before 6...I ended up getting up the second time the cat came meowing in by me which was about 7:30....while Charlie is still snoring away.
Thank goodness I did sleep well all night! until I was able to fall asleep with the snoring and waking up to a meowing cat!
Okay, I'm done complaining and telling my story.....
Monday, November 11, 2013
Monday, November 11th
Arrived a few minutes early today for my treatment....but seems like there were more people there today than ever!
I had to wait a few minutes....three people ahead of me...thank goodness each one takes about 5 minutes.
Still have my energy which is a good thing.
Taking a total of 2 pills per day until Wednesday then I will take 2 in the morning and 1 at night.
I think I have all this energy from the full moon too! Washed windows (inside and out) on Saturday and Sunday - just the two upstairs bedrooms. Having the windows shut for a while - when I opened them to wash the outside there were stink bugs inbetween the window and the frame! No wonder why we had so many last year - they hibernated in the windows!!!
Off to bed now....it's midnight....Wonder if I'll be able to fall asleep....Charlie is already in bed = snoring up a storm! And he thinks he doesn't snore!
I had to wait a few minutes....three people ahead of me...thank goodness each one takes about 5 minutes.
Still have my energy which is a good thing.
Taking a total of 2 pills per day until Wednesday then I will take 2 in the morning and 1 at night.
I think I have all this energy from the full moon too! Washed windows (inside and out) on Saturday and Sunday - just the two upstairs bedrooms. Having the windows shut for a while - when I opened them to wash the outside there were stink bugs inbetween the window and the frame! No wonder why we had so many last year - they hibernated in the windows!!!
Off to bed now....it's midnight....Wonder if I'll be able to fall asleep....Charlie is already in bed = snoring up a storm! And he thinks he doesn't snore!
Saturday, November 9, 2013
Saturday, November 9th
Wonderful news yesterday.....I am NOT a carrier of breast cancer!!! Great news for family medical history!
My name won't go down in history for this!!! You all still need to be checked but it doesn't have to be at a young age.
Today, Saturday, is a day off....now you think I'd sleep late - nope, I actually got up earlier!!!
While I still have energy, I will try to accomplish a nice list of things to do around the house.
Charlie is working until 1 - and I'm sure he'll be outside doing something. I know his number on priority will be sitting in his chair outside = looking for that mole!!! I think in his previous life he was a cat. The man can sit and watch for a long time! He saw it moving underground and tried to get it...but it was smarter than him....and the dogs = you think they'd try to get it....I guess it doesn't have a smell and they had no interest in trying.
Nicholas's trip to the Philappians has been canceled due to the Super Typhoon.
My name won't go down in history for this!!! You all still need to be checked but it doesn't have to be at a young age.
Today, Saturday, is a day off....now you think I'd sleep late - nope, I actually got up earlier!!!
While I still have energy, I will try to accomplish a nice list of things to do around the house.
Charlie is working until 1 - and I'm sure he'll be outside doing something. I know his number on priority will be sitting in his chair outside = looking for that mole!!! I think in his previous life he was a cat. The man can sit and watch for a long time! He saw it moving underground and tried to get it...but it was smarter than him....and the dogs = you think they'd try to get it....I guess it doesn't have a smell and they had no interest in trying.
Nicholas's trip to the Philappians has been canceled due to the Super Typhoon.
Thursday, November 7, 2013
Thursday, November 7th
I didn't realize that I hadn't blogged yesterday....so here goes....
There was an older woman with her husband getting ready for her radiation treatment on Monday. The woman was frail and had a beautiful smile. The husband was handsome and always cracking a joke. They reminded me of what Charlie and I may be like when we are 'alot' older. She even commented on how nice my hair was and who cut it. I didn't have time to tell her that I do it myself! One time, when we have time to talk I will ask her...I wonder if she is/was a hairdresser....now that would be a hoot!
=================
Wednesday, November 6th
Every fifth time (supposidly, give or take a day) they do an x-ray right before the radiation....so I had that and then after the treatment I saw the doctor (you do that once a week). Again, I was pretty much in and out...and because it was a nice day I decided to run to Kohl's and pick up a bra....well, I ended up beginning my Christmas shopping! and I did get two bra's! Now, do I hold the other things I bought for myself and wrap them??? or do I begin using them????
On my way home, which was about 12:15, knowing that I had to begin my chemo pill I was wondering if I should put it off until today (Thursday) due to me not even eating breakfast yet....
The little angel sitting on my shoulder kept whispering 'yes, take it' while the devil on the other side said 'wait'....I decided to listen to the angel!
Dr. May said that there doesn't have to be a certain amount of time in between dosages...so that was actually my answer.
I took one right after I ate my breakfast (which was 12:45)...then about 9 pm I decided to take the other...the hardest thing is deciding what to eat with the later one. It's not that I eat bread or crackers....I had some pepperoni and cheese then took the pill.
====================
Thursday, November 7th
Again, in and out....My appt. is 10:30 and I was out back in my car by 10:46. It was drizzeling so I'm glad I went shopping yesterday even though I had more time today.
Ate my breakfast and took my pill....this week (until next Wednesday) I take 1 in the morning and 1 at night.
Next week I go for the CBC blood work and take 2 in the morning and 1 at night....this is to keep the symptoms from coming on too strong....something I can definitely handle.
I really think Dr. May is so afraid that because I am the one taking these pills on my own I'm sure she's wondering if I really am taking them.....
I prefer these pills to work rather than going there for hours at a time while getting the chemo pumped (via IV) into my body.
I may have already mentioned this. Dr. May wants me to take these continuely for 2 to 3 months, then do a scan to see if/they are working or did their job! Now to pray that these do work and I'll be done in a few months with the chemo!!!! This I can handle!
Charlie and I watched a TV movie last night where there was a man that was holding people hostage in a restaurant - no one knowing anyone other than who they were dining with. One gentleman was asked 'why' he wanted to live. He didn't have an answer and the killer then asked him if he would give his life in order for the rest to live. The man said 'no, kill them and let me live'.....with that = I say - I'm glad that I am the one with the cancer rather than anyone else in my family. I know I can do this and I know exactly how I feel. I will take this on for the love of my family.
Yesterday, Nov. 6th was a special healing day for the National Shrine of St. Jude Prayer for Cancer. This is a prayer they also had on this site:
Prayer to St. Jude
Most holy apostle, St. Jude, faithful servant
and friend of Jesus, the Church honors and
invokes you universally as the patron of hope.
Please intercede on my behalf. Make use of that
particular privilege given to you to bring
hope, comfort, and help where they are needed most.
Come to my assistance in this great
need that I may receive the consolation
and help of heaven as I work with my
challenges, particularly (here make your request).
I praise God with you and all the saints forever.
I promise, blessed St. Jude, to be ever
mindful of this great favor, to always
honor you as my special and powerful patron
and to gratefully encourage devotion to you. Amen
There was an older woman with her husband getting ready for her radiation treatment on Monday. The woman was frail and had a beautiful smile. The husband was handsome and always cracking a joke. They reminded me of what Charlie and I may be like when we are 'alot' older. She even commented on how nice my hair was and who cut it. I didn't have time to tell her that I do it myself! One time, when we have time to talk I will ask her...I wonder if she is/was a hairdresser....now that would be a hoot!
=================
Wednesday, November 6th
Every fifth time (supposidly, give or take a day) they do an x-ray right before the radiation....so I had that and then after the treatment I saw the doctor (you do that once a week). Again, I was pretty much in and out...and because it was a nice day I decided to run to Kohl's and pick up a bra....well, I ended up beginning my Christmas shopping! and I did get two bra's! Now, do I hold the other things I bought for myself and wrap them??? or do I begin using them????
On my way home, which was about 12:15, knowing that I had to begin my chemo pill I was wondering if I should put it off until today (Thursday) due to me not even eating breakfast yet....
The little angel sitting on my shoulder kept whispering 'yes, take it' while the devil on the other side said 'wait'....I decided to listen to the angel!
Dr. May said that there doesn't have to be a certain amount of time in between dosages...so that was actually my answer.
I took one right after I ate my breakfast (which was 12:45)...then about 9 pm I decided to take the other...the hardest thing is deciding what to eat with the later one. It's not that I eat bread or crackers....I had some pepperoni and cheese then took the pill.
====================
Thursday, November 7th
Again, in and out....My appt. is 10:30 and I was out back in my car by 10:46. It was drizzeling so I'm glad I went shopping yesterday even though I had more time today.
Ate my breakfast and took my pill....this week (until next Wednesday) I take 1 in the morning and 1 at night.
Next week I go for the CBC blood work and take 2 in the morning and 1 at night....this is to keep the symptoms from coming on too strong....something I can definitely handle.
I really think Dr. May is so afraid that because I am the one taking these pills on my own I'm sure she's wondering if I really am taking them.....
I prefer these pills to work rather than going there for hours at a time while getting the chemo pumped (via IV) into my body.
I may have already mentioned this. Dr. May wants me to take these continuely for 2 to 3 months, then do a scan to see if/they are working or did their job! Now to pray that these do work and I'll be done in a few months with the chemo!!!! This I can handle!
Charlie and I watched a TV movie last night where there was a man that was holding people hostage in a restaurant - no one knowing anyone other than who they were dining with. One gentleman was asked 'why' he wanted to live. He didn't have an answer and the killer then asked him if he would give his life in order for the rest to live. The man said 'no, kill them and let me live'.....with that = I say - I'm glad that I am the one with the cancer rather than anyone else in my family. I know I can do this and I know exactly how I feel. I will take this on for the love of my family.
Yesterday, Nov. 6th was a special healing day for the National Shrine of St. Jude Prayer for Cancer. This is a prayer they also had on this site:
Prayer to St. Jude
Most holy apostle, St. Jude, faithful servant
and friend of Jesus, the Church honors and
invokes you universally as the patron of hope.
Please intercede on my behalf. Make use of that
particular privilege given to you to bring
hope, comfort, and help where they are needed most.
Come to my assistance in this great
need that I may receive the consolation
and help of heaven as I work with my
challenges, particularly (here make your request).
I praise God with you and all the saints forever.
I promise, blessed St. Jude, to be ever
mindful of this great favor, to always
honor you as my special and powerful patron
and to gratefully encourage devotion to you. Amen
Tuesday, November 5, 2013
Election Day! - Tuesday, Nov. 5, 2013
In and out...of radiation....no waiting.....I did have to see Dr. May today (and we waited). Charlie came along to hear what she had to say.
I'm so bad!!! I have MY thoughts and she has her own...and mine are not what she suggests!
Dr. May wants me to begin taking the chemo pill (Xeloda) tomorrow (I thought I'd start on Sunday)....
She knows me too well - after complaining - she said I can take a lower dose to see how I'm doing = 1 pill in the morning and 1 before bed, beginning tomorrow (Wednesday). Next week she would like me to take 2 in the morning and 1 before bed....AND she wants me to have blood drawn for the CBC (to see how my red and white blood count is) once a week. Originally she said I'd be taking this pill (a total of 4 per day = 2 am and 2 pm)and taking them for two weeks straight and one week off....she changed her mind on that one.....it is now DAILY.
That's pretty much it for being in and out!!!! Radiation is a breeze but doing blood work, you have to wait due to so many people usually ahead of you.
I do have my appointments for the rest of the month.
Tomorrow is the end of week two (2) of radiation with a total of six (6) weeks.
Dr. May also said that after two or three months from now, we will do another SCAN to see if we should still stay with this pill or change over to the IV or something else.
Prays that all this cancer will be gone in two months!!!!
The anxiety of what 'new' symptoms I may have........something I am not looking forward to.
I'm so bad!!! I have MY thoughts and she has her own...and mine are not what she suggests!
Dr. May wants me to begin taking the chemo pill (Xeloda) tomorrow (I thought I'd start on Sunday)....
She knows me too well - after complaining - she said I can take a lower dose to see how I'm doing = 1 pill in the morning and 1 before bed, beginning tomorrow (Wednesday). Next week she would like me to take 2 in the morning and 1 before bed....AND she wants me to have blood drawn for the CBC (to see how my red and white blood count is) once a week. Originally she said I'd be taking this pill (a total of 4 per day = 2 am and 2 pm)and taking them for two weeks straight and one week off....she changed her mind on that one.....it is now DAILY.
That's pretty much it for being in and out!!!! Radiation is a breeze but doing blood work, you have to wait due to so many people usually ahead of you.
I do have my appointments for the rest of the month.
Tomorrow is the end of week two (2) of radiation with a total of six (6) weeks.
Dr. May also said that after two or three months from now, we will do another SCAN to see if we should still stay with this pill or change over to the IV or something else.
Prays that all this cancer will be gone in two months!!!!
The anxiety of what 'new' symptoms I may have........something I am not looking forward to.
Friday, November 1, 2013
Friday, November 1st
Finished FOR THE WEEK! again, I'm just counting weeks - not days...just finished week #1.
Yesterday I made chicken soup for me and added noodles for Charlie...we had a small cup full for lunch. Dinner I made, in the crock pot, ribs. Well, they must not have agreed with me! I had a stomach ache before going to bed and I ended up getting up a little before 6 AM and being sick! I haven't thrown up since my very last chemo way back in August 2012! ....so, is it the radiation or what I ate? Charlie had no problems.
I'm thinking (as per Paul) that the supplements I'm taking are clearing out the toxins in my body and I guess the ribs were too greasy....at least that's what I'm hoping is the cause.
I did ask the radiation nurse and she said that shouldn't be a side effect of WHERE I'm being radiated....which is a good thing.
I went in a few minutes ahead of time (to talk to the nurse) and the woman that goes ahead of me said she wasn't feeling well. She has lung cancer and was coughing...so she saw the radiation doctor and I took her place. I changed and before I was able to sit down, they called me in...I was out of the facility at 10:30!!! That was really nice!!!!
Not feeling well during the night = I didn't have the best sleep and now I'm pretty tired. When I play the Words With Friends game - while I'm thinking of a word, I tend to 'doze off'!!! It's taking me longer to play a game!!!
Charlie seems to be better today! He's been sleeping in Paul's room. He said he finally fell asleep last night (or this morning) about 3....needless to say, he was still fast asleep by the time I came home and stayed in bed until after 11:30 AM!!!
Now to relax tomorrow and Sunday = no reason to be on a 'strick' schedule!!! I can take my time in doing things around the house!
Don't forget to set you clocks one hour BACK == fall = the time falls behind do this Saturday night before you go to bed. :)
Yesterday I made chicken soup for me and added noodles for Charlie...we had a small cup full for lunch. Dinner I made, in the crock pot, ribs. Well, they must not have agreed with me! I had a stomach ache before going to bed and I ended up getting up a little before 6 AM and being sick! I haven't thrown up since my very last chemo way back in August 2012! ....so, is it the radiation or what I ate? Charlie had no problems.
I'm thinking (as per Paul) that the supplements I'm taking are clearing out the toxins in my body and I guess the ribs were too greasy....at least that's what I'm hoping is the cause.
I did ask the radiation nurse and she said that shouldn't be a side effect of WHERE I'm being radiated....which is a good thing.
I went in a few minutes ahead of time (to talk to the nurse) and the woman that goes ahead of me said she wasn't feeling well. She has lung cancer and was coughing...so she saw the radiation doctor and I took her place. I changed and before I was able to sit down, they called me in...I was out of the facility at 10:30!!! That was really nice!!!!
Not feeling well during the night = I didn't have the best sleep and now I'm pretty tired. When I play the Words With Friends game - while I'm thinking of a word, I tend to 'doze off'!!! It's taking me longer to play a game!!!
Charlie seems to be better today! He's been sleeping in Paul's room. He said he finally fell asleep last night (or this morning) about 3....needless to say, he was still fast asleep by the time I came home and stayed in bed until after 11:30 AM!!!
Now to relax tomorrow and Sunday = no reason to be on a 'strick' schedule!!! I can take my time in doing things around the house!
Don't forget to set you clocks one hour BACK == fall = the time falls behind do this Saturday night before you go to bed. :)
Thursday, October 31, 2013
Thursday, October 31, 2013 HAPPY HALLOWEEN
One week done! Five more to go! I'd rather count the weeks than the days.
I met with the radilogist doctor today and everything is fine. The nurse took my weight, body mass, and blood pressure then the doctor asked me a few questions....All is good.
I will meet with Dr. May on Tuesday the 5th of November to talk about the chemo pill. I'm sure I will start taking it on the following Sunday = I hope. I think it would be much easier to take the pills beginning on the first day of the week rather than starting right in the middle....but seems when I want to begin = just may not be when Dr. May highly suggests.....more to come!
Gloomy day for Trick or Treaters; warm enough but it would have been nicer if the sun was out.
We don't get any kids here....our house is too far off the road....which is a good thing because the dogs would just bark all night!!
Charlie is under the weather! Now I have to make sure I don't catch his germs!
Today I drove home a different route....and it turned out to be 3 miles longer and took five more minutes....the old and regular route is fine....all back roads. The only traffic I get is when there is garbage pick up or mail delivery or people riding their bikes.
Happy Halloween!
I met with the radilogist doctor today and everything is fine. The nurse took my weight, body mass, and blood pressure then the doctor asked me a few questions....All is good.
I will meet with Dr. May on Tuesday the 5th of November to talk about the chemo pill. I'm sure I will start taking it on the following Sunday = I hope. I think it would be much easier to take the pills beginning on the first day of the week rather than starting right in the middle....but seems when I want to begin = just may not be when Dr. May highly suggests.....more to come!
Gloomy day for Trick or Treaters; warm enough but it would have been nicer if the sun was out.
We don't get any kids here....our house is too far off the road....which is a good thing because the dogs would just bark all night!!
Charlie is under the weather! Now I have to make sure I don't catch his germs!
Today I drove home a different route....and it turned out to be 3 miles longer and took five more minutes....the old and regular route is fine....all back roads. The only traffic I get is when there is garbage pick up or mail delivery or people riding their bikes.
Happy Halloween!
Monday, October 28, 2013
day 4 - still the first week = October 28th
I just can't get a break! These bumps in the road are getting to me!
Don't fret....I'm still staying positive! I guess that's why I waited until this late to post for today.
Was in and out in 15 minutes today for radiation....BUT, I did run into Dr. May and she highly suggested that I do the chemo pill while doing radiation.
Feeling a little upset with her decision...she did say if any of the symptoms are uncomfortable she will lower the dose or give me medication to help alleviate it. Dr. May wants me to see her BEFORE I begin the chemo pills (which will arrive via US Mail on Wednesday)...now to see when I can actually meet with her and hopefully the appointment they give me will be right after my radiation treatment so I don't have to go back later in the day.
In the meantime I had to make an appointment with the dentist...a new dentist, right here in town. The dentist I was using moved to Oregon back in December and, as usual, I've held out as long as I could. I did call during the summer but they were closed for vacation and I just ended up waiting....too long....
I have to go for radiation tomorrow (Tuesday) and hopefully it will be quick like today...I have to pre-medicate one hour before the dental appointment (taking 4 amoxicilian pills). They know that I will be in Sparta and I maybe late on arrival...just hope they will be able to do what is needed so I don't have to go back right away.
Don't fret....I'm still staying positive! I guess that's why I waited until this late to post for today.
Was in and out in 15 minutes today for radiation....BUT, I did run into Dr. May and she highly suggested that I do the chemo pill while doing radiation.
Feeling a little upset with her decision...she did say if any of the symptoms are uncomfortable she will lower the dose or give me medication to help alleviate it. Dr. May wants me to see her BEFORE I begin the chemo pills (which will arrive via US Mail on Wednesday)...now to see when I can actually meet with her and hopefully the appointment they give me will be right after my radiation treatment so I don't have to go back later in the day.
In the meantime I had to make an appointment with the dentist...a new dentist, right here in town. The dentist I was using moved to Oregon back in December and, as usual, I've held out as long as I could. I did call during the summer but they were closed for vacation and I just ended up waiting....too long....
I have to go for radiation tomorrow (Tuesday) and hopefully it will be quick like today...I have to pre-medicate one hour before the dental appointment (taking 4 amoxicilian pills). They know that I will be in Sparta and I maybe late on arrival...just hope they will be able to do what is needed so I don't have to go back right away.
Friday, October 25, 2013
day 3 radiation - Friday, October 25th
Finished day 3.....not bad at all = other than getting up an hour earlier and out of the house in time to make my appointment. I don't want to be late or I will disrupt the rest of the morning appointments.
I arrived on time, undressed and put on my gown - always remembering: opening in the back!, then waited my turn. I probably had to wait about 15 minutes but once I was in the 'room', I was done in about 1 minute.....changed back into my street clothes and off we were = to go shopping!
Charlie came with me today and then we went to the beauty supply house and Sam's Club....of course every time I get into the car with Charlie and we go a different route (we left from Sparta) = we get lost or take the LONG way!!!! So, we went way out of our way and got off at the Allamuchy Rt. 80 exit....when we were so close to 206 and the Ledgewood exit......and we're going to drive to S.C. for Samantha's graduation in December?!!! He's been down there before (driving with Sam) but anything is possible with this man that I love! As the saying goes = for better or worse....!
Full week next week = Monday through Friday........now to relax on Saturday and Sunday = no need to rush in the mornings!
Before I go for my visit, I clean the upper level and sometimes still have time to vacuum the first floor....then I come home and not have to do any cleaning!
I arrived on time, undressed and put on my gown - always remembering: opening in the back!, then waited my turn. I probably had to wait about 15 minutes but once I was in the 'room', I was done in about 1 minute.....changed back into my street clothes and off we were = to go shopping!
Charlie came with me today and then we went to the beauty supply house and Sam's Club....of course every time I get into the car with Charlie and we go a different route (we left from Sparta) = we get lost or take the LONG way!!!! So, we went way out of our way and got off at the Allamuchy Rt. 80 exit....when we were so close to 206 and the Ledgewood exit......and we're going to drive to S.C. for Samantha's graduation in December?!!! He's been down there before (driving with Sam) but anything is possible with this man that I love! As the saying goes = for better or worse....!
Full week next week = Monday through Friday........now to relax on Saturday and Sunday = no need to rush in the mornings!
Before I go for my visit, I clean the upper level and sometimes still have time to vacuum the first floor....then I come home and not have to do any cleaning!
Thursday, October 24, 2013
day 2 radiation - Thursday, October 24, 2013
No waiting!!! Wahoo! I arrived on time for my radiation appointment and did my thing = scanned in; changed (got it right! opening in the back!!); then sat down to wait....but I ended up seeing the doctor first.
You are suppose to see the radiologist doctor once a week and they prefer it to be the beginning of the week. They take your weight and body mass (never asked why) and blood pressure reading to.
I double checked on 'symptoms'....very few - maybe skin irritation and they ask you to use Aquaphor (? spelling) which they also gave a sample of and suggested to use it right after the treatment. Fatigue maybe another.
I am not sure of the following: IF I don't do chemo right now, I could possibly cut the treatments from six weeks down to four weeks.....I'm in the process of asking Dr. May (oncologist) if I can do this. I spoke with Nurse Kathy yesterday regarding the supplements. She was a little confused when I first mentioned it as I had originally asked for just the Multizyme which she said was okay to use - then she saw the 'new' sheet of supplements and said she had to read up about them and, of course, ask Dr. May. Nurse Kathy was with a patient when I was leaving and one of the receptionist's went to ask Dr. May - she came back saying 'yes' to taking the supplements....now if you know ME, I didn't ask her if it was ALL of them or maybe she was still thinking it was just that one supplement....I ask so many questions that people tend to forget what the real question was. I just put in a phone call to verify 'both' - can I take ALL of the supplements and hold off a few weeks till doing the chemo....I will wait to hear from the office today.
Radiation went really fast! They play music and unless I was really 'out of it' I only remember hearing one song....it went that fast! I couldn't have been in there more than 5 minutes.
Day 2 done!
Hopefully tomorrow (day 3) will be quicker = I don't have to see the doctor - unless Dr. May wants to talk to me.
You are suppose to see the radiologist doctor once a week and they prefer it to be the beginning of the week. They take your weight and body mass (never asked why) and blood pressure reading to.
I double checked on 'symptoms'....very few - maybe skin irritation and they ask you to use Aquaphor (? spelling) which they also gave a sample of and suggested to use it right after the treatment. Fatigue maybe another.
I am not sure of the following: IF I don't do chemo right now, I could possibly cut the treatments from six weeks down to four weeks.....I'm in the process of asking Dr. May (oncologist) if I can do this. I spoke with Nurse Kathy yesterday regarding the supplements. She was a little confused when I first mentioned it as I had originally asked for just the Multizyme which she said was okay to use - then she saw the 'new' sheet of supplements and said she had to read up about them and, of course, ask Dr. May. Nurse Kathy was with a patient when I was leaving and one of the receptionist's went to ask Dr. May - she came back saying 'yes' to taking the supplements....now if you know ME, I didn't ask her if it was ALL of them or maybe she was still thinking it was just that one supplement....I ask so many questions that people tend to forget what the real question was. I just put in a phone call to verify 'both' - can I take ALL of the supplements and hold off a few weeks till doing the chemo....I will wait to hear from the office today.
Radiation went really fast! They play music and unless I was really 'out of it' I only remember hearing one song....it went that fast! I couldn't have been in there more than 5 minutes.
Day 2 done!
Hopefully tomorrow (day 3) will be quicker = I don't have to see the doctor - unless Dr. May wants to talk to me.
Wednesday, October 23, 2013
day 1; week 1 of radiation - Wednesday, October 23, 2013
I'm exhausted!!!! But it's not from the radiation!
Charlie was snoring ALL night! Having 'something on my mind' made it even harder to fall back to sleep once I was awake.
Radiation experience:
After being tattooed last week and being explained on checking in, undressing, etc. it was a breeze....but I did forget to put my gown on with the opening in the back, so when I saw the woman ahead of me with her back exposed....I went into the room to change.
I was 10 minutes early and someone ahead of me was late which made the woman ahead of me go during my appt. time of 10:30. I had to wait another 15 minutes....
They make you lay flat on your back, exposing the side/area that will be radiated...then they adjust the sheet and form asking you NOT to move...but instinct makes you lift your body...I just told them to yell at me so I don't move.
Then they x-ray you and do the radiation....it took about 15 minutes (give or take). The doctor wanted to see me but because the woman ahead of me was also new the nurse said I could wait until tomorrow to see her.
I did stop to see Dr. May regarding the supplements....guess she had so much 'stuff' to catch up on that she didn't read/see it at all. Her nurse, Kathy, will look it over and ask Dr. May and then she'll get back to me.
That's it for day 1....
Charlie was snoring ALL night! Having 'something on my mind' made it even harder to fall back to sleep once I was awake.
Radiation experience:
After being tattooed last week and being explained on checking in, undressing, etc. it was a breeze....but I did forget to put my gown on with the opening in the back, so when I saw the woman ahead of me with her back exposed....I went into the room to change.
I was 10 minutes early and someone ahead of me was late which made the woman ahead of me go during my appt. time of 10:30. I had to wait another 15 minutes....
They make you lay flat on your back, exposing the side/area that will be radiated...then they adjust the sheet and form asking you NOT to move...but instinct makes you lift your body...I just told them to yell at me so I don't move.
Then they x-ray you and do the radiation....it took about 15 minutes (give or take). The doctor wanted to see me but because the woman ahead of me was also new the nurse said I could wait until tomorrow to see her.
I did stop to see Dr. May regarding the supplements....guess she had so much 'stuff' to catch up on that she didn't read/see it at all. Her nurse, Kathy, will look it over and ask Dr. May and then she'll get back to me.
That's it for day 1....
Thursday, October 17, 2013
Thursday, October 17, 2013
I can't believe it's already Thursday!! And after typing it, I still had to think - is it really Thursday already?!!!
Busy week going to doctor appointments!
Monday was the PET scan, Tuesday was the meet the radiation party, Wednesday I made an appointment to see Dr. John Harrington, Nutrition - muscle response testing/kinesiologist and today (Thursday) I went to be 'fitted' for my radiation.
I posted about Monday and Tuesday already....Wednesday is new...so here goes.
Knowing that I'm going to begin chemo and radiation soon, I wanted to see if Dr. John could give me a multi-vitamin that hopefully doesn't interfere with either one rather than going to the drug store to buy a bottle off the shelf.
Well, I came home with 8 bottles of 'whole food supplements'. Designed especially for me! Dr. John 'tested' the dose size too. This is so interesting; how he knows or gets his signals from my body saying what it needs.... He said I shouldn't have 'soy' products (unknowingly I have); found I have pesticides in my body and gave me supplements to help make the liver stronger as well as supplements for the breast. Oh and probiotics for the bowels.....now to see if Dr. May (oncologist) agrees to me taking these.
Dr. May is away until Tuesday so I will find out then. Dr. John feels that if I take these and still see him on a weekly basis to make sure the dose hasn't changed...that I shouldn't feel as badly as some symptoms may make me. According to one of the oncology nurses they usually don't want ANY vitamins taken - not knowing what would 'counteract' with the chemo.....so, we'll see if I can take any of these.
Went for my 12:30 appt. in radiology today which should have taken less than 1 hour...lucky me = I got to wait longer! They do a CT scan and the machine was out of order for a while....I had to wait another 45 minutes. We left there (Charlie was with me) after 1:45. Being fitted for this treatment didn't take long at all and being tattooed was really fast.
I am scheduled to begin radiation on Wednesday, October 23rd and my time will be 10:30. It shouldn't take long at all...check in with a 'scanner card', change into a robe and then when it's your turn to get radiated (which should take less than 15 minutes) you leave...of course the drive to and from is 35 minutes (each way).
The end.
Busy week going to doctor appointments!
Monday was the PET scan, Tuesday was the meet the radiation party, Wednesday I made an appointment to see Dr. John Harrington, Nutrition - muscle response testing/kinesiologist and today (Thursday) I went to be 'fitted' for my radiation.
I posted about Monday and Tuesday already....Wednesday is new...so here goes.
Knowing that I'm going to begin chemo and radiation soon, I wanted to see if Dr. John could give me a multi-vitamin that hopefully doesn't interfere with either one rather than going to the drug store to buy a bottle off the shelf.
Well, I came home with 8 bottles of 'whole food supplements'. Designed especially for me! Dr. John 'tested' the dose size too. This is so interesting; how he knows or gets his signals from my body saying what it needs.... He said I shouldn't have 'soy' products (unknowingly I have); found I have pesticides in my body and gave me supplements to help make the liver stronger as well as supplements for the breast. Oh and probiotics for the bowels.....now to see if Dr. May (oncologist) agrees to me taking these.
Dr. May is away until Tuesday so I will find out then. Dr. John feels that if I take these and still see him on a weekly basis to make sure the dose hasn't changed...that I shouldn't feel as badly as some symptoms may make me. According to one of the oncology nurses they usually don't want ANY vitamins taken - not knowing what would 'counteract' with the chemo.....so, we'll see if I can take any of these.
Went for my 12:30 appt. in radiology today which should have taken less than 1 hour...lucky me = I got to wait longer! They do a CT scan and the machine was out of order for a while....I had to wait another 45 minutes. We left there (Charlie was with me) after 1:45. Being fitted for this treatment didn't take long at all and being tattooed was really fast.
I am scheduled to begin radiation on Wednesday, October 23rd and my time will be 10:30. It shouldn't take long at all...check in with a 'scanner card', change into a robe and then when it's your turn to get radiated (which should take less than 15 minutes) you leave...of course the drive to and from is 35 minutes (each way).
The end.
Tuesday, October 15, 2013
Tuesday, October 15th
They have support groups...but I heard if you go to them you come back depressed! Hearing how awful they feel....blogging - is perfect for me! One way conversation!!! But I do get a lot of positive responses from all of you!!!
Monday, Oct. 14th = went for PET scan at 2 pm. I had to make sure I ate something at 8 am as you must fast at least six (6) hours before the test. I mentioned to the technician that I had an appointment at 10 am with the doctor and they really needed the results of this test.
Tuesday, Oct. 15th = met with the radiologist doctor and nurses....felt like I was beginning all over again with answering ALL the questions. Even though they are part of the Cancer Center - they do not share their records with each other.
Radiology department is quick!!! Scheduled appt. was for 10 and I was in the office within a few minutes....if I didn't have to meet with the nurse (giving her ALL my past history along with family history), I would have been done a lot sooner. The doctor's name is (I may spell is incorrectly) Dr. Kaucher...very young man (at least he looks it)....but very nice! He explained everything to me.
I go back on Thursday, the 17th....to be 'fitted' for radiation. They make some kind of 'cast' then 'tattoo' you so they can line up the machine. This appt. should take about one (1) hour and they also do a CT scan - no need for the drink or the contrast (which is a great thing!!!).
Dr. Kaucher feels that I should begin radiation next Wednesday (the 23rd) for 6 weeks. I was hoping for 5 - not wanting 7 - so I got 6!
With radiation your not suppose to 'shave' or use regular deodorant (ugh) 6 weeks without shaving?!! I've only gone 3 days - even though I just pick up the razor and shave - I don't know how much 'hair' I have there!
I will also be taking one chemo pill - Xeloda while doing the radiation. A total of 4 pills a day (2 in the morning and 2 at night).
I asked if I could take supplements, if I go back to the muscle testing doctor or kinesiologist and the oncologist nurse suggested 'no'...they don't know if any supplements will interfere with the chemo/radiation....they highly suggest not taking anything other than what they already know works.
In between, waiting for the scan results I went to get a copy of my bloodwork from last Thursday. No sugar...well, my glucose is still on the high side (not too high but I really thought it would have been a lot lower); my potassium is low (not too low to take a pill suppliment) but thinking that eating all these avocado's and every once in a while a banana = didn't work!!! What got my heart rate beating faster was the number of the CEA...not seeing the scan report but seeing this number really got me nervous!! My CEA in June was 89.9; August was 163.0; and now (Oct.) it's 240.0!!! the results of my PET scan - stable!!! Which is terrific news!!!
Impression of the PET scan reads:
1. Three areas of uptake within the lung and two within the liver appear stable when compared to the previous study.
2. Several additional pulmonary nodules are seen within the lungs unchanged from previous study. They are too small to be evaluated on the PET portion of the scan.
Monday, Oct. 14th = went for PET scan at 2 pm. I had to make sure I ate something at 8 am as you must fast at least six (6) hours before the test. I mentioned to the technician that I had an appointment at 10 am with the doctor and they really needed the results of this test.
Tuesday, Oct. 15th = met with the radiologist doctor and nurses....felt like I was beginning all over again with answering ALL the questions. Even though they are part of the Cancer Center - they do not share their records with each other.
Radiology department is quick!!! Scheduled appt. was for 10 and I was in the office within a few minutes....if I didn't have to meet with the nurse (giving her ALL my past history along with family history), I would have been done a lot sooner. The doctor's name is (I may spell is incorrectly) Dr. Kaucher...very young man (at least he looks it)....but very nice! He explained everything to me.
I go back on Thursday, the 17th....to be 'fitted' for radiation. They make some kind of 'cast' then 'tattoo' you so they can line up the machine. This appt. should take about one (1) hour and they also do a CT scan - no need for the drink or the contrast (which is a great thing!!!).
Dr. Kaucher feels that I should begin radiation next Wednesday (the 23rd) for 6 weeks. I was hoping for 5 - not wanting 7 - so I got 6!
With radiation your not suppose to 'shave' or use regular deodorant (ugh) 6 weeks without shaving?!! I've only gone 3 days - even though I just pick up the razor and shave - I don't know how much 'hair' I have there!
I will also be taking one chemo pill - Xeloda while doing the radiation. A total of 4 pills a day (2 in the morning and 2 at night).
I asked if I could take supplements, if I go back to the muscle testing doctor or kinesiologist and the oncologist nurse suggested 'no'...they don't know if any supplements will interfere with the chemo/radiation....they highly suggest not taking anything other than what they already know works.
In between, waiting for the scan results I went to get a copy of my bloodwork from last Thursday. No sugar...well, my glucose is still on the high side (not too high but I really thought it would have been a lot lower); my potassium is low (not too low to take a pill suppliment) but thinking that eating all these avocado's and every once in a while a banana = didn't work!!! What got my heart rate beating faster was the number of the CEA...not seeing the scan report but seeing this number really got me nervous!! My CEA in June was 89.9; August was 163.0; and now (Oct.) it's 240.0!!! the results of my PET scan - stable!!! Which is terrific news!!!
Impression of the PET scan reads:
1. Three areas of uptake within the lung and two within the liver appear stable when compared to the previous study.
2. Several additional pulmonary nodules are seen within the lungs unchanged from previous study. They are too small to be evaluated on the PET portion of the scan.
Friday, October 11, 2013
Friday, October 11, 2013
I may have a few typo-errors...so just don't be critical reading this......
=========================
I didn't have my paperwork along side of me when I posted my blog yesterday.
I mentioned a number = 29 and didn't realize what it was actually called...so here goes....
This is from a four page report and hopefully I'll have all the info correct....I could probably scan it and post it...but that's too easy....I'll just sit here and re-type it!
Breast Cancer Assay - oncotypeDX - uses RT=PCR to determine the expression of a panel of 21 genes in tumor tissue. The 'recurrence score' is calculated from the gene expression results. Recurrence score range is 1 - 100.
My number is 29.
CLINICAL EXPERIENCE: PROGNOSIS FOR NODE NEGATIVE, ER-POSITIVE PATIENTS =
The clinical validation study included female patients with Stage 1 or 2, Node Negative, ER-Positive cancer treated with 5 years TAMOXIFEN - my score had an average rate of distant recurrence of 19% (95% CI: 15% - 23%
CLINCIAL EXPERIENCE: CHEMO BENEFIT FOR NODE NEGATIVE, ER-POSITIVE PATIENTS =
A study involving 651 patients from a B-20 study, which included patients with Stage 1 or 2, Node negaive, ER-Positive breast cancer. Patients were randomized to either tamoxifen alone or tamoxifen plus CMF or MF chemo.
I fall into the the Intermediate score of recurrence - benefit of chemo at 10 years.
CLINICAL EXPERIENCE: PROGNOSIS AND CHEMO BENEFIT FOR NODE POSITIVE, HER-POSITIVE PATIENTS =
This studey included post-menopausal female patients. Hormone Receptor (HR-Positive randomized to either tamoxifen alone or CAF chmo followed by tamoxifen CAF-T). The endpoint for this study was disease-free survival and outcomes after 5 years of follow-up were presented.
the best and easist read:
QUANTITATIVE SINGLE GENE REPORT:
ER- score = 10.8 Positive (range from <3.7 to >12.5)
The magnitude of tamoxifen benefit increases as the ER schore increases from 6.5 to >12.5.
PR Score = 7.5 Positive (range <3.2 to >10.0)
antibody (immunohistochemistry)
HER2 Score - 8.5 Negative (range <7.6 to >13.0)
validated from concordance studies of 755 samples using the HercepTest assay (immunohistochemistry) and another study of 568 samples uning PathVysion assay (FISH).
I guess unless you know how to actually read this report - you'll understand the therapy to be used.......and here I fall just a little over the middle and one (1) that I don't have to worry about.
All this means: I have Stage 2 Invasive ductal carcinoma Breast Cancer...
it went into one of my lymph nodes bringing me to stage 2 along with the size of the lesion (tumor) being a dimension of 2.4 cm
=========================
I didn't have my paperwork along side of me when I posted my blog yesterday.
I mentioned a number = 29 and didn't realize what it was actually called...so here goes....
This is from a four page report and hopefully I'll have all the info correct....I could probably scan it and post it...but that's too easy....I'll just sit here and re-type it!
Breast Cancer Assay - oncotypeDX - uses RT=PCR to determine the expression of a panel of 21 genes in tumor tissue. The 'recurrence score' is calculated from the gene expression results. Recurrence score range is 1 - 100.
My number is 29.
CLINICAL EXPERIENCE: PROGNOSIS FOR NODE NEGATIVE, ER-POSITIVE PATIENTS =
The clinical validation study included female patients with Stage 1 or 2, Node Negative, ER-Positive cancer treated with 5 years TAMOXIFEN - my score had an average rate of distant recurrence of 19% (95% CI: 15% - 23%
CLINCIAL EXPERIENCE: CHEMO BENEFIT FOR NODE NEGATIVE, ER-POSITIVE PATIENTS =
A study involving 651 patients from a B-20 study, which included patients with Stage 1 or 2, Node negaive, ER-Positive breast cancer. Patients were randomized to either tamoxifen alone or tamoxifen plus CMF or MF chemo.
I fall into the the Intermediate score of recurrence - benefit of chemo at 10 years.
CLINICAL EXPERIENCE: PROGNOSIS AND CHEMO BENEFIT FOR NODE POSITIVE, HER-POSITIVE PATIENTS =
This studey included post-menopausal female patients. Hormone Receptor (HR-Positive randomized to either tamoxifen alone or CAF chmo followed by tamoxifen CAF-T). The endpoint for this study was disease-free survival and outcomes after 5 years of follow-up were presented.
the best and easist read:
QUANTITATIVE SINGLE GENE REPORT:
ER- score = 10.8 Positive (range from <3.7 to >12.5)
The magnitude of tamoxifen benefit increases as the ER schore increases from 6.5 to >12.5.
PR Score = 7.5 Positive (range <3.2 to >10.0)
antibody (immunohistochemistry)
HER2 Score - 8.5 Negative (range <7.6 to >13.0)
validated from concordance studies of 755 samples using the HercepTest assay (immunohistochemistry) and another study of 568 samples uning PathVysion assay (FISH).
I guess unless you know how to actually read this report - you'll understand the therapy to be used.......and here I fall just a little over the middle and one (1) that I don't have to worry about.
All this means: I have Stage 2 Invasive ductal carcinoma Breast Cancer...
it went into one of my lymph nodes bringing me to stage 2 along with the size of the lesion (tumor) being a dimension of 2.4 cm
Thursday, October 10, 2013
Thursday, October 10th
Another bumpy road ahead....to begin another journey.....I really think I can see the 'stop sign' not too far ahead!
A little confused as Dr. May said a lot of things today. If I have this correct:
*1st step: PET scan (since the last one was in June) on Monday the 14th (Paul's 27th birthday!)
*2nd step: radiation to begin - soon. I will meet with the doctor to discuss how long I need to do this on Tuesday (after he reviews the scan results). It is a definite 5 days per week (Mon - Fri); but not sure if I can do it in 5 weeks or the full 7 weeks.....I'll just think of this as going to a real job - leaving my house.
I asked Dr. May if eating NO sugar - should the results of this scan be better? She doubts it very much.......and with cancer = I can never tell!!!! Maybe it will and everyone will be in awe!!! including me!!! and if this does work = I'd never eat sugar again!
*3rd step: to begin chemo PILLS - 2 - 2x a day for two weeks then off one week and go back to draw bloodwork = all this while doing radiation. Then another scan to see if the pills are working or I'd need to do the IV chemo. While on radiation they will give me a lower dosage of the 'pills'.
*4th step: and I can't remember 'why'....biopsy of either the liver or lungs (which ever is closer and easier to get to)...I think to see if the cancer that had been caught in one of the lymph nodes (for the breast cancer) was from the colon cancer = I think....Charlie and I had to absorb so much info, I can't remember.
All in all....I'm not happy about going for the radiation but there are alot of things that I'm not happy with that I still end up doing...for me? na, for my family..YES!
Dr. May is amazed by me...that I'm doing so well - with all that my body is and has been going through....because of her feeling this way - that was one of the reasons why she wants me to do the radiation.
The test that came back - my score as 29% positive in Stage 2 breast cancer and because it was just over the half way mark she wants me to do all of this.
Of course my day didn't end as well as it should have. Charlie and I were suppose to go into Newton to pick up some stuff at Lowe's so he took his truck. With expected rain (and never really got any, just a few drops here and there)....when we finally left the building - arrived at 11:15 and walked out about a little after 2 - got into his truck and it didn't start!!!! give me a break!!! So we called AAA and they finally arrived at 3:15!!!! and it was the battery that needed to be charged as Charlie left his headlights on. Thank goodness I got up early enough to eat breakfast...but I was starving!!! Got home and glad I had some leftovers so I heated them up....and then prepared Charlie's dinner - pasta with oil and garlic....I'm sure I'll be eating something soon again.
A little confused as Dr. May said a lot of things today. If I have this correct:
*1st step: PET scan (since the last one was in June) on Monday the 14th (Paul's 27th birthday!)
*2nd step: radiation to begin - soon. I will meet with the doctor to discuss how long I need to do this on Tuesday (after he reviews the scan results). It is a definite 5 days per week (Mon - Fri); but not sure if I can do it in 5 weeks or the full 7 weeks.....I'll just think of this as going to a real job - leaving my house.
I asked Dr. May if eating NO sugar - should the results of this scan be better? She doubts it very much.......and with cancer = I can never tell!!!! Maybe it will and everyone will be in awe!!! including me!!! and if this does work = I'd never eat sugar again!
*3rd step: to begin chemo PILLS - 2 - 2x a day for two weeks then off one week and go back to draw bloodwork = all this while doing radiation. Then another scan to see if the pills are working or I'd need to do the IV chemo. While on radiation they will give me a lower dosage of the 'pills'.
*4th step: and I can't remember 'why'....biopsy of either the liver or lungs (which ever is closer and easier to get to)...I think to see if the cancer that had been caught in one of the lymph nodes (for the breast cancer) was from the colon cancer = I think....Charlie and I had to absorb so much info, I can't remember.
All in all....I'm not happy about going for the radiation but there are alot of things that I'm not happy with that I still end up doing...for me? na, for my family..YES!
Dr. May is amazed by me...that I'm doing so well - with all that my body is and has been going through....because of her feeling this way - that was one of the reasons why she wants me to do the radiation.
The test that came back - my score as 29% positive in Stage 2 breast cancer and because it was just over the half way mark she wants me to do all of this.
Of course my day didn't end as well as it should have. Charlie and I were suppose to go into Newton to pick up some stuff at Lowe's so he took his truck. With expected rain (and never really got any, just a few drops here and there)....when we finally left the building - arrived at 11:15 and walked out about a little after 2 - got into his truck and it didn't start!!!! give me a break!!! So we called AAA and they finally arrived at 3:15!!!! and it was the battery that needed to be charged as Charlie left his headlights on. Thank goodness I got up early enough to eat breakfast...but I was starving!!! Got home and glad I had some leftovers so I heated them up....and then prepared Charlie's dinner - pasta with oil and garlic....I'm sure I'll be eating something soon again.
Sunday, September 22, 2013
Sunday, September 22 - first day of fall
When someone makes a verbal comment that they've read my blog but no new entries....I figure I'd better write something!
(I also just found the 'paragraph' option!!!)
I'm feeling great! Enjoying the 'waiting' game to see Dr. May to find out the results of this test that will determine what 'therapy' I will be doing. My appt. is scheduled for the 10th of October.
I'm doing great with my new menu (eating habits). I totally enjoy seeing the numbers on the bathroom scale go DOWN!!! So far I have lost 10 lbs! and no exercising. I did walk the dogs a few times but that doesn't really count as I don't do it daily. I should, but Marlee pulls and walks back and forth, from one side of the road to the next and when Jersey stops to sniff something - Marlee has to sniff it to!!! They are really funny to watch - or maybe when people pass us in the road - I wonder what THEY are thinking!!!
We went to a Memorial Serice yesterday (Saturday) for Charlie's brother in law's sister's son. He had passed away several months ago and (the parents) Gail and Lou live down in SC close to Cathy and Carl (Charlie's sister and bro in law). They all use to live up here in the Boonton Township area. Funny how you forget that friends of theirs were there too so we had caught up with a few of them. Seems like a lifetime ago with not seeing them and they still live in this area. A sad day turned into a small reunion. They had 40 blue balloons (the age of the son) with photo's attached to the string which they let go at the end of the service - so pretty!
Other than this....I've been keeping myself busy...Charlie is ALWAYS doing something! The man never sits still until the sun goes down - as his eyelids do the same thing! After dinner he relaxes on the recliner watching a show and the eyelids close! Out for the count!
Samantha will be graduating in December and we will be driving down - arrangements are made! We're driving so we can put some of her things in my car. December in SC...wonder if I'll be able to have my top down???? I really wouldn't count on it...with our luck SC will have a snow or ice storm!!!
I may not be posting for another week or two....just to let you know - no news is great news!!!!
(I also just found the 'paragraph' option!!!)
I'm feeling great! Enjoying the 'waiting' game to see Dr. May to find out the results of this test that will determine what 'therapy' I will be doing. My appt. is scheduled for the 10th of October.
I'm doing great with my new menu (eating habits). I totally enjoy seeing the numbers on the bathroom scale go DOWN!!! So far I have lost 10 lbs! and no exercising. I did walk the dogs a few times but that doesn't really count as I don't do it daily. I should, but Marlee pulls and walks back and forth, from one side of the road to the next and when Jersey stops to sniff something - Marlee has to sniff it to!!! They are really funny to watch - or maybe when people pass us in the road - I wonder what THEY are thinking!!!
We went to a Memorial Serice yesterday (Saturday) for Charlie's brother in law's sister's son. He had passed away several months ago and (the parents) Gail and Lou live down in SC close to Cathy and Carl (Charlie's sister and bro in law). They all use to live up here in the Boonton Township area. Funny how you forget that friends of theirs were there too so we had caught up with a few of them. Seems like a lifetime ago with not seeing them and they still live in this area. A sad day turned into a small reunion. They had 40 blue balloons (the age of the son) with photo's attached to the string which they let go at the end of the service - so pretty!
Other than this....I've been keeping myself busy...Charlie is ALWAYS doing something! The man never sits still until the sun goes down - as his eyelids do the same thing! After dinner he relaxes on the recliner watching a show and the eyelids close! Out for the count!
Samantha will be graduating in December and we will be driving down - arrangements are made! We're driving so we can put some of her things in my car. December in SC...wonder if I'll be able to have my top down???? I really wouldn't count on it...with our luck SC will have a snow or ice storm!!!
I may not be posting for another week or two....just to let you know - no news is great news!!!!
Thursday, September 12, 2013
Thursday, September 12th
Just came back from my follow up office visit with the surgeon. I did end up having some fluid which she extracted...wasn't a lot...normal amount.....BUT I did find out that I have Stage 2 - it went to one of my lymph nodes. No more surgery needed or recommended by my oncologist as chemo will take care of it. < >
I had a call yesterday from the lab that will be running this test on the tumor which was removed - Onotype dx - it will show a 'grade' of cancer and then that will help determine what type of treatment needed....chemo via IV or pill; hormone therapy and/or radiation. The results will take 14 business days and then they are faxed to both the surgeon and oncologist. I had to cancel my appt. with Dr. May for next Wednesday so we could find out more at the later date which will be October 10th...I'm sure chemo will begin shortly after that. < >
Other than all that...I'm feeling fine, energy level good/great! and I love my new way of eating. Some people would call it a diet...I just say it's the new......I made myself an omlet for breakfast = peppers/onions/asparagus/broccoli/turkey (leftover from dinner) with an egg.....yum! very good! lunch is usually a salad with veggies/avocado/meat/tomatoe/cucumber and anything else I might have in the refrig. I made spaghetti squash the other day and there is still some more in the refrigerato...now its me and Paul = who gets to leftovers first!!!!
please excuse the type-o's....I can't seem to find the spell check on this!!!!
Friday, September 6, 2013
Friday, September 6th
Another good day....I'm actually writing this after midnight = making this really Saturday! < > Took my shower today! Feels so good to be under that nice warm running water! I did shampoo my hair on Thursday...thank goodness I have that nice sink in the basement!!!! < > Looked at myself....I'm still there...a little less of me, but I'm all there!!! Thank you God! < > Didn't do much today, Charlie went golfing with Nicholas during the day. He just joined a bowling team which began tonight...he had fun! He needs some downtime and time to enjoy himself...he's always so busy! < > I mentioned (I think) that we bought a hammock (with a stand) and we put it on our top deck...it's pretty nice for the price we paid! I laid out there for about an hour. Even with the temperture being chilly, the sun was very warm! I'm not ready for the summer to end! < > This morning while preparing breakfast, I had to put on socks! My feet were so cold! < > That's all folks...not much more to add.
Thursday, September 5, 2013
Thursday, September 5th
Got up to use the bathroom about 4 AM and the cat was right besides me wanting to go out...so downstairs I went, gave her some food and out the door she went! Then got up again about 6:30 and the dogs wanted to go out = Charlie still fast asleep....down I go and also fill up my ice pack bag. I also used this 'great butterfly pillow' that was given to me to help sleep or rest my arm - worked out great!!! The next thing I know, I smell Paul cooking his breakfast and I look at the clock = 10:30!!!! I have never slept that long!!!! Charlie too!!!! < > Got up and Charlie made his coffe, I made breakfast = turkey bacon and fried eggs. Then I did the dishes....hmmmm, I thought the surgeon said I should rest at least one day....guess 'they' thought the one day was yesterday! < > Which doesn't matter, I feel very well! A little sore but not enough to have to take any medication, not even a Tylenol. < > Charie finally put together an outside hammock (on a stand) instead of vacuuming the top floor (the dogs sleep in our room and on the loft so there is always dog hair which I vacuum every day. < > Charlie just left to cut the township ball field so I will fix the bed....I will try my hardest NOT to vacuum as per doctor, but if I do, it will be with my left hand/arm. < > Not too bad sleeping last night. I propped myself up on the bed reading pillow (looks like the top of a chair) which I ended up sliding down during the night. Then I used this 'butterfly pillow' that I was given from a friend that uses/used this for the same purpose....it was really comfy...I should have used it earlier in the night! It is now my 'buddy pillow' which I tuck under my arm. < > It's almost 1 pm and now to begin my day.....wonder how much I will actually accomplish on my own. I know I won't push myself - just do what I can and I do know when to stop. < > again, thank you all for your support and prayers!
Wednesday, September 4, 2013
Wednesday, September 4, 2013
I'd say, I could write a book - but I have so far!!! I do have a tendency to not leave out too many details.....hope you don't mind reading it all! > < Left here this morning at 6:15 to get to Newton Memorial Hospital by 6:45....checked in and then they hooked me up - to IV, blood pressure monitor and put the leg compressors on but not plugged in. Waited until 8:30 to go for this radation thing (I forget what they call it). Surgeon Dr. O'Shea said that it may burn for about 90 seconds. The gentleman along with the doctor that injected me said - a lot of women don't complain about it but then again, there are some that do! Twice I was 'shot'....and with no problem - no burning....just felt the 'pinch' as you do with anytype of needle! Then under this thing that looked like a CT scan machine. Layed there for 10 or 15 minutes then he turned it to my side for another 10/15 minutes....then back to my 'holding tank'.....the worst thing is this IV = it goes right through me....I visited the restroom about a dozen times!!!! > < Dr. O'Shea spoke to us right before the surgery and then she talked to Charlie afterwards. < > I had two (2) lymph nodes removed and the lesion. She told Charlie they looked fine but it was more of a precaution. All these are being sent to a lab and then they will get the results in about two weeks, right before I see her for a check up. < > I feel a little groggy...or maybe it's just my eyelids that are heavy. Not having enough sleep and the anticipation of this and praying that this day would FLY by! < > Newton Hospital has changed completely on the inside...it looks so nice! and they have WiFi so I was able to play my Word With Friends (thanks for Barb being available during that time of day too!), checking facebook, my gmail account and playing solitair was a timesaver too. Charlie sat beside me the entire time...he reading his book and me with my Kindle!!! < > I think I got it all down....came home and had some baked turkey cold cuts...and now I'm hungry again! ==just to say this....a lumpectomy isn't as bad as you would think. So, don't be like me and wait until, until, the lesion would get too big.....go and have your mammogram!!! Good grief now I'm telling YOU what to do!!! < > Thank you all for your prayers, positive thoughts and for being here!!!
Friday, August 30, 2013
Kinesiology (? spelling)
I know I mentioned this to several people and said I'd blog about the results....I will begin at the beginning....grab your snack or cup of coffee.....here goes.....I can never make a story short....
Paul hasn't been feeling well for the past few years due to a tick bite...he's been trying different things...and finally he has won his battle, finding what works for him!! He's been going to a doctor in NY. He has a web site which you can log onto and check it out = Bodycures.com This doctor studies Kinesiology (if I'm saying this correctly). Paul loves this doctor! During one of his appointments they discussed 'emotions' and Paul is reading a book regarding this technique. While reading this, Paul is 'experimenting' on me.
One day while Paul was sitting next to me, as I glanced over to look at him, I realized he looked so wonderful and healthy again! I asked what he was doing different and he told me about this doctor. Of course he had to run off to do his thing so he just left me with - check out Kinesiology on the internet. I did and I got a bit discouraged...thinking this is a big hoax! But I didn't really want to say this to Paul, if he feels it's working, why bust his bubble. Just thinking - this isn't for me.
While wanting to 'practice' on me....Paul took my arm and I extended it while he place his other hand on my shoulder...said a few things and anything negative my arm would lower on it's own....sure, but I think he's pressing on my arm to go down....after a few tries I walked away and got ready to take my shower. Before Paul tried his technique on me I had just stripped Samantha's bed and put it back together....I didn't feel tired - I've done beds before and more....In the shower I began to feel tired; exhausted; like I was on chemo....I'm thinking = what the heck. I've cleaned my house before and why on earth am I feeling so tired all of a sudden. Out of the shower with a towel around me, I went back to Paul's room and told him that he left me with 'negative energy'!! Give me 'positive energy back'. All he did was ask me my name and I turned around to leave his room == OMG...I felt wide awake and energized!!!! Okay, NOW I'M A BELIEVER!!! This kid is just reading a book and trying it out on me...what can a doctor that practices this do?!!!
His doctor is about two hours away - and if you know me, I will NOT drive that far! Paul had a BBQ here and they were talking about this - now this is really weird - there is a doctor that practices this right here in our town!! Blairstown!!!
With that, Paul called to make an appointment for me! I was a little excited going knowing what Paul was able to do and I couldn't wait to see what this. a real, doctor would do.
I laid on this table with my right arm extended. The doctor placed his hand gently on my arm and the other hand he moved over my body. HE found the 'weak' spots!!! He waved his hand over my right breast and my arm went down! Over my left breast and it was still extended where it was....HE did not know which breast I had the cancer in!!! The area where I had the liver resection - same thing....He put his hand over the entire liver and nothing happened until he 'hit' that spot. This sounds so strange! But it works! Finding the weak spots. He did some other 'testing' while there and then I met with him again several days later for him to discuss his findings.
I was a little discouraged after he told me that I really have to change my diet in order to de-tox and get healthy again. All of a sudden - change your diet. I knew I wasn't eating the right way. Too much junk food, too much sugar (chocolate included). Cancer grows on sugar! I knew that but I enjoy eating this way. I eat good food but also the junk food!!! To get healthy I have to change. Sure 63 years old and now I have to eat correctly! No more sugar! which includes baked goods, chocolate and fruit. No more carbs = no bread, pasta, potatoes! Okay, so what do I eat?! The same diet as Paul!! I always felt so bad for Paul - always cooking or grilling his foods...no junk food in his diet...I'd never be able to do this. How on earth do I get Charlie to eat right? Duh, I do the food shopping! I won't buy the stuff we won't be eating! Can I change Charlie? If he's eating what I can't - will I loose my self control? NO! I will have total commitment to this. Eating all types of vegetables and meats (chicken, beef, turkey, pork and try buying organic). I can do this! I WILL do this!
My full pantry will be empty! I will give away all my stuff - cereals, crackers, pudding mixes, boxed cake mixes, If it's not there - I won't want it. Paul did say they have a 'rice' pasta....guess I'll have to try that.
I'm not sure if everyone that goes to this doctor changes everything...not sure if they can include fruits. Maybe I just have too much sugar in my system that needs to be cleaned out!
Once beginning this new meal plan I'm suppose to go back once a week to see if I am detoxing. Then taking supplements to help along the way. I haven't really begun since I'm not sure how I will feel right after the surgery and if I need to go for radiation treatments which would be every day (Monday thru Friday) for seven weeks. Just the drive alone, back and forth, is 1 hour, then the wait....too much stress to have to have another appointment. I know, I'm making excuses!
I have begun! I did my food shopping on Tuesday and bought only the things I can eat. Felt so weird not going up and down all the isles! Even though my cart was full (without cleaning products or paper goods)I didn't spend as much as I usually do. We'll see if it stays the same when I need to purchase the toilet paper, paper towels, etc.
Would I recommend YOU going? YES - but only if you want to be healthy! Changing your diet is very hard...but knowing you will benefit from it in the long run is worth the try.
Now, seeing what I've fed my babies, now grown adults, I feel a little guilty. Mother's are suppose to teach your children how to eat. Not having the junk food around will be an incentive for Nicholas and Samantha as Paul already knows what he can and can't eat.
Another journey to begin = a healthy start....Just beginning this on Wednesday and today being Friday = I already lost 1 (one) pound! Great way to begin!!! I know I'm way above the weight I should be!
snacking now is: nuts, peppers dipped in hummus and some leftover meat!
Not sure if I'd invite anyone for dinner!!! Not yet.....
Monday, August 12, 2013
Monday, Auguest 12th
As good as news can be = I received GOOD news today! from the breast surgeon!!!
Charlie came with me for my consult/visit with Dr. O'Shea.....he was nervous and when she called me in he asked if he should come in or wait in the waiting room.....
The good news is that I need a Lumpectomy. Here I was thinking the worst...but this is the good news! She spoke to us for about 1/2 hour and put our minds at ease.>
< The surgery is scheduled for the first Wednesday of September....of course now I need the pre-surgical appointments = blood work and EKG done....all do-able in this time frame.>
< She also spoke about radiation after the surgery - 5 days a week (M - F)for 7 (seven) weeks. She doesn't do the 'seed' implant. She's done them before and doesn't like the results - may burn the skin or the muscle wall into your lungs = so we'll forgo that one.>
< I won't start any chemo (pill form) until two weeks of healing time after surgery...and right now it does look very good as to taking the 'pill'. There are still side effects with this but not as bad as the IV....and I'll be checked to make sure the pill is doing it's job or I'd have to do the original IV......we'll take one step at a time and not hurdle through this.>
< Surgery is done as outpatient, about 1 1/2 hour and she will check the lympe nodes at the same time.>
< Lumpectomy is a real good thing - she said I would NOT be a candidate for re-construction....>
< Prayers do work! Thank you for your prayers and support. WE will get through this small detour on my road to recovery.>
< Not sure if I will post for the next two weeks....so if you don't check - you might not miss anything!>
< Enjoy the rest of the summer - it sure did go by fast! Kids are getting ready to go back to college and school too.......Never stop believing in miracles!
Tuesday, August 6, 2013
Tuesday, August 6, 2013.......BIG winner of MY health lottery!!!!
Had my appointment today to see Dr. May to discuss 'my journey'.....I definetly have breast cancer and it's not associated with colon cancer. Her suggestion is to have a mastectomy right away so we can proceed with the chemo treatment....PILL form!!! The only good thing about this! <
> I now have an appointment with one of the Top Surgeons in NJ (in Sparta) on Monday. Dr. O'Shea whom also did my biopsy. I'm sure she will discuss what the procedure will entale....one question I would have = would I be able to have re-construction surgery the same day/time as the mastectomy. I think I'd have a hard time when I showered if nothing was done. <
> I really never read up about breast cancer...there are so many different types and all treated a little differently. Here is 'some' information that was on the pathology report....<
>I have - Invasive Ductal Carcinoma
and ,
> Estrogen receptor: Positive, 99.7% - Progesterone receptor: Positive, 99.39% - HER2 Marker: Negative, Score 0 - KI-67: Unfavorable, 83.21% -and Additional immunohistochemical stains: Focally positive: CK7 - Negative: CK20, CDX2 <
> I will be taking chemo via a PILL....no loss of hair, maybe thinning....and other side effects along with it...I won't have to sit in the infusion room for 5 hours but I will have to go weekly for blood work....and she will watch me close and I'll have a scan in 6 months to see if my body is accepting this chemotherapy treatment. Amazing that chemo is available in pill form for both cancer's! <
> I had blood work drawn today and hopefully the insurance company will agree to doing a 'gene' test....for my kids and relatives. Dr. May says they (relatives) should relay to their doctors that colon and breast cancer runs in our family -- see, I'll go down in history with my family health!!!! <
> I will update next Monday, the 12th - to let you know what is 'next' on my bumpy road! <
> I still believe in miracles! and I also know that God has His plan for me! <
> Thank you all, again, for your continued support and prayers! <
> Love to all! <<<
>>> I just looked at the 'preview' of my blog and there are no paragraphs! I'll put in a 'symbol' for a new paragraph...(< - >)
Wednesday, July 31, 2013
the end of July 2013!
Not sure exactly where I left off with my last blog....I write them, not necessarily READ them! I was told by some of my friends that they check my blog a lot and I should update even if I don't have any information.....so here, by 'highly suggested' people, is my update.....
I had my breast biopsy on the 18th by (what I have come to find out just recently) a top surgeon in NJ! Dr. O'Shea. She did an ultrasound and the biopsy right in her office and called me with results last Thursday. She said it IS breast cancer but is still waiting for another pathology report and then she will meet with Dr. May (who will be returning to work from her vacation tomorrow) and I have an appointment with Dr. May scheduled for Tuesday the 6th of August.
At this point, I have no idea of 'what type' of breast cancer I have except that it is NOT related to colon cancer and if I can beat colon cancer (as I have so far) breast cancer will be a breeze! Sure, that's what the surgeon says.....
Oh yes, I did go for my mammogram too........OMG!!! I kind of remembered how it felt....but now I know why some of us hold off a little to get one......I know what a piece of steak feels like when you put it in a George Forman Grill!!!! or a sandwich in a panini press!!!!
That's my update. I know I may have said this before but I'll say it again = if my health was the lottery = I'd be a millionaire!!!
I'm in great spirits right now....knowing I have another bump in the road with a few curves ahead....with all your prayers and knowing it's in the hands of God - I will get through this.
I had my breast biopsy on the 18th by (what I have come to find out just recently) a top surgeon in NJ! Dr. O'Shea. She did an ultrasound and the biopsy right in her office and called me with results last Thursday. She said it IS breast cancer but is still waiting for another pathology report and then she will meet with Dr. May (who will be returning to work from her vacation tomorrow) and I have an appointment with Dr. May scheduled for Tuesday the 6th of August.
At this point, I have no idea of 'what type' of breast cancer I have except that it is NOT related to colon cancer and if I can beat colon cancer (as I have so far) breast cancer will be a breeze! Sure, that's what the surgeon says.....
Oh yes, I did go for my mammogram too........OMG!!! I kind of remembered how it felt....but now I know why some of us hold off a little to get one......I know what a piece of steak feels like when you put it in a George Forman Grill!!!! or a sandwich in a panini press!!!!
That's my update. I know I may have said this before but I'll say it again = if my health was the lottery = I'd be a millionaire!!!
I'm in great spirits right now....knowing I have another bump in the road with a few curves ahead....with all your prayers and knowing it's in the hands of God - I will get through this.
Sunday, July 21, 2013
Sunday, July 21, 2013
I went for the breast biopsy on Thursday....won't get results until this week = probably the end of the week.
Dr. May is on vacation this week....
The breast surgeon's name is Dr. O'Shea. A very young woman and very nice. Came into the room (without a uniform and wasn't sure she was the doctor until she introduced herself). Very pleasant. Congratulated me for being a survivor....I said I wasn't....feeling that if I made it through a year without chemo and/or anything coming back = then I'd consider myself a survivor. The last time I had chemo was the end of August 2012 - almost made it....but 'new' lesions came back in March....so.....
The only way I can put this === If my health was the lottery, I'd be a millionaire!!!!
Can't win playing the cash lottery but I can expect something new to grow that isn't suppose to be there!
Right now, I'm feeling like I can and will conquer the world....it may take some more time....but I will get there!!!!
I'm going for a mammogram tomorrow (Monday)......another NEW venture coming soon!!! Oh how lucky can a girl get?!!!!
Dr. May is on vacation this week....
The breast surgeon's name is Dr. O'Shea. A very young woman and very nice. Came into the room (without a uniform and wasn't sure she was the doctor until she introduced herself). Very pleasant. Congratulated me for being a survivor....I said I wasn't....feeling that if I made it through a year without chemo and/or anything coming back = then I'd consider myself a survivor. The last time I had chemo was the end of August 2012 - almost made it....but 'new' lesions came back in March....so.....
The only way I can put this === If my health was the lottery, I'd be a millionaire!!!!
Can't win playing the cash lottery but I can expect something new to grow that isn't suppose to be there!
Right now, I'm feeling like I can and will conquer the world....it may take some more time....but I will get there!!!!
I'm going for a mammogram tomorrow (Monday)......another NEW venture coming soon!!! Oh how lucky can a girl get?!!!!
Saturday, July 13, 2013
July 13, 2013 - it's been a long time......
It's been a long time = feeling really good and I still do.....BUT with having stage 4 - it can come back, which it did.
I had a CT scan back in March which showed two new nodules in my lungs. Everyone has nodules that come and go. We (Dr. May and myself) weren't too concerned at that time and decided to 'watch' it. Three months later I had a PET scan which is actually better.
I'm allergic to the iodine contrast for the CT scan so it just shows anything new and sizes. The PET scan illuminates cancerous growths along with sizes. Words used in the reports are 'suggesting' and 'could indicate'.....meaning that they can only 'see' them as a photo but not being able to actually know without a biopsy if they are.....
This scan report showed two nodules in my lungs that have grown; a new lesion in my liver; and something in my breast.
I am in the process of scheduling a bioposy/ultrasound for my breast. To find out if this is 'breast cancer' or still considered 'colon cancer which has spread'. Once the findings come back we will proceed with the correct chemo therapy.
No surgery is set for the breast = Dr. May wants to see it actually shrink while doing chemo. Eventually if it doesn't go away on its own, then surgery will be considered.
Right now, I am a bit upset - I was almost considered a 'survivor' - last chemo I had was last August! But I have resigned myself to knowing that there is always a possibility of this appearing again = which it has. I am a strong, thick headed, woman and if a 5 year old has to go through this and still smile = I can do this again!
Dr. May is trying to schedule the breast biopsy (which is just an office visit) for this coming week...once the results are back then we will discuss what will be done.
Thank you all who have continued to pray for me and I ask you again to start. At one point I tended to 'not' believe in miracles' but I shake my head and say that this is really a miracle! finding this now while everything is small - if I bet this before = I can do it again! Now to pray that once I begin my chemo that my side effects and symptoms are easy enough to handle.
I had a CT scan back in March which showed two new nodules in my lungs. Everyone has nodules that come and go. We (Dr. May and myself) weren't too concerned at that time and decided to 'watch' it. Three months later I had a PET scan which is actually better.
I'm allergic to the iodine contrast for the CT scan so it just shows anything new and sizes. The PET scan illuminates cancerous growths along with sizes. Words used in the reports are 'suggesting' and 'could indicate'.....meaning that they can only 'see' them as a photo but not being able to actually know without a biopsy if they are.....
This scan report showed two nodules in my lungs that have grown; a new lesion in my liver; and something in my breast.
I am in the process of scheduling a bioposy/ultrasound for my breast. To find out if this is 'breast cancer' or still considered 'colon cancer which has spread'. Once the findings come back we will proceed with the correct chemo therapy.
No surgery is set for the breast = Dr. May wants to see it actually shrink while doing chemo. Eventually if it doesn't go away on its own, then surgery will be considered.
Right now, I am a bit upset - I was almost considered a 'survivor' - last chemo I had was last August! But I have resigned myself to knowing that there is always a possibility of this appearing again = which it has. I am a strong, thick headed, woman and if a 5 year old has to go through this and still smile = I can do this again!
Dr. May is trying to schedule the breast biopsy (which is just an office visit) for this coming week...once the results are back then we will discuss what will be done.
Thank you all who have continued to pray for me and I ask you again to start. At one point I tended to 'not' believe in miracles' but I shake my head and say that this is really a miracle! finding this now while everything is small - if I bet this before = I can do it again! Now to pray that once I begin my chemo that my side effects and symptoms are easy enough to handle.
Friday, February 22, 2013
Friday, February 23,2013
I just couldn't get myself to watch Robin Roberts journey tonight...she is such a strong woman. I think of my journey and feel like a whimp ....she endured so much pain for so many months....I praise her for being so brave....she is a true winner. God bless her!
Saturday, February 2, 2013
No health issues...just been busy....doing......
February 2nd
I've had so much energy and I'm putting it to good use! Cleaning...organizing stuff, and even throwing away 'some' stuff too....
Early December we had a water leak in one of our 'tubes' in our waterbed. Granted it's about 20 years old or older....When I went to fix the bed I noticed the blankets were soaking wet and we found the leak in the tube on 'my' side of the bed. Years ago, Charlie had one on his side and we called to get a 'new' tube. When we were looking for the leak I noticed on the mattress (it looks like a shell) that there were spots of mold! Thank goodness we've had a 3 inch piece of foam over the mattress so were weren't in any danger mold related (I think)....We decided to get a new bed but we'd have to wait until after Christmas...with having the Christmas tree and decorations all over the house - it would have been hard to have them deliver the mattress and not knock anything down.
With 'that' in mind (a new mattress); while shopping at Sam's Club during December I noticed a pretty nice bed frame (top and bottom) and the cost was very reasonable...but I had my convertible and it was way too cold to buy it and bring it home with the top down.
I had mentioned to Charlie about this bedframe....and time went by....finally we decided to go and buy it one Sunday that he was home. When we arrived at Sam's Club we noticed that there were no more 'pick up' signs there and it was just the floor model that looked like a full/double size which wouldn't do. I decided to check out the mattresses while we were there...Walking to the back of the store, Charlie was looking UP to see if there were any 'display' model boxes around and he came across a cart with the entire 'set'!!! 4 boxes!!! ready to go!!! We thought it maybe another customers so I told him that we'd go pick up the dinner rolls that we also came in for and if it was still there when we got back - we'd take it. Well, taking our time and going back --- it was still there! Charlie took the cart and off we went to check out! He was walking ahead of me and I was a little behind -- just in case the original buyer saw us walking towards the cashier I'd say that I didn't know him! (nice of me!)....we got to the cashier and the woman ahead of us was griping about a product that was rung up with the wrong price (and we wanted to just pay and get out)....I told Charlie I was going to see the mark down on the Christmas stuff but he aggressively said 'NO'! A couple came up behind us and were talking about running into another couple and not knowing their names...but we thought they were going to complain about their bedframe....no.....now a gentleman came up to us and tapped Charlie on his shoulder - I was listening to this woman in front of me complaining....then Charlie poked me --the guy was asking what the price was - being that there was no ticket....I remembered the price from the first visit - wow! and here WE thought it was his!!! While he was asking us, the girl was ringing us up and charging us for each piece - duh, it's a set....anyway, we got it and RAN out of the store. I still wanted to go back to get the Christmas stuff but Charlie wanted to get out. We had one of the employees that was putting the carts away to help load the one piece of the bedframe....all in his truck! done!! and then he goes to put the dinner rolls in and the whole bag rips...about a dozen fell out and Charlie looked at me as if he wanted to pick them up....no way, the pigeons had more to eat!!! I was laughing hysterically the expression he had on his face when the guy asked the price....and his expression as we were running to the cashier and out the store....still thinking of it - I can laugh so hard!!! We finally got it home and in the garage. Paul helped Charlie bring it upstairs to Sam's room.
Now, noticing the carpet in our room - disgusting!!! spots all over the place....Years ago, when Paul was a baby - he threw up on it and of course stained the carpet....now with the dogs - just them laying on it made spots everywhere! So we decided that if we were getting a new mattress and bedframe we may as well get carpet....and paint the room.
I'm telling Charlie - that we need this to sell the house. The bedroom didn't look like a master suite...it was so messy....I had to change my original comforter because Marlee had chewed a corner of it when she was a pup and I just bought a regular comforter to make due at the time.
We ordered the carpet, and bought the paint. We kept it the original color; a very light green. We took EVERYTHING out of our bedroom as the carpet was coming on a Wednesday and the bed on Saturday. I had written down that the first paint took only 1 gallon. Charlie bought it at Lowe's and we both painted. Of course we ran out of paint only having a small portion left. He was off Monday and Tuesday, so we went back to Lowe's on Tuesday to buy another gallon.....came home and painted the rest of the room - touching up a fairly large area where our pillows were. Charlie had to go to some seminar that night and came home after 10 pm.....I came up to the bedroom to get ready for bed about midnight and noticed the area on the wall where he touched it up....uh oh...the paint didn't match!!! He came up and noticed that he bought the wrong type. First was ' matte finish' and the replacement was 'eggshell' - same color but noticeably different!!! Here we were = 1 AM in the morning RE-painting the whole wall!!!! We had to do it then because the carpet was coming the next morning!
Here we had all our furniture on the loft and in the hallway to the kids bedrooms! Such a mess!! We were sleeping in Sam's room. Her bed is so hard!!! I couldn't sleep the first night so I decided to sleep downstairs on the floor in the living room with the pellet stove rather than in my Mom's bedroom as the cat sleeps on her bed and I'd be sneezing all night....the floor was not comfortable at all...the next night I decided to sleep in Sam's bed rather than the floor.
Carpet guys came and went...arrived here about 8 AM and left by 1 PM....wow, it looked so nice! The carpet guy said it was pretty bad! After all this carpet has been down for 27years!!!! He really said it was pretty gross!!!
Thursday we brought the bed frame in and Charlie began to 'sort' out all the pieces. Friday he figured he'd put it together...again, another outing for him - had to go to the chiropractor so we didn't finish putting it together. The mattress was to be delivered between 12 noon and 4 pm, so we had more than enough time in the morning to put it together.
8AM I woke up and shook Charlie telling he that we should put the frame together....he said it would only take a few minutes so we could wait....well, not 5 minutes later the phone rings and they were delivering another mattress in Blairstown and asked if they could bring ours now....YIKES!!! We both jumped out of bed and began putting it together....I had to move my car and it was done about 10 minutes before they arrived!!! This bedframe has everything screwed in...headboard, sideboards and bottom frame all connected to the dividers in the middle.
When they left, we began bringing in the furniture. Dusting and cleaning it all before bringing it in the nice clean carpet! We were finished about 4 PM...exhausted!!! But it looked so nice.
Several years ago I had bought a new comforter set. I was going to put it on our bed but we had just gotten Marlee and I didn't want to do it seeing what she did to the older comforter set and due to our bed being a platform - it was hard to get the sham on...so it was put away; and used now!!!
After the room was put together I thought the windows needed something....off to Walmart for valances....got them and 7:30 AM the next day, I was washing screens and windows and putting up the new window treatments.
I love the way our room looks now!!!
So much cleaning to do!!! Dust everywhere from when Charlie put in the pellet stove - the hearth...with cutting the wood and putting down the tiles....so I had to dust off the bookshelves.
During all this, I cleaned Paul's bedroom. I took out his bookcase (that had a ton of t-shirts) in it and placed them all in his closet. Paul takes after me - can't throw or give anything away!!!! so I found another place for all of them. I moved the bookcase into my bathroom and am using it as a linen cabinet. I bought baskets to put the stuff inside so it looks 'clean and organized' (of course I can't find anything even though I tried to keep things somewhat together). I moved his shoe racks and just made his room neater!!! Sam's room is done...I put a few flower arrangements in there. She already had a wall unit in it that has her TV and other things...HER room looked more like the master suite than ours DID....now ours is beautiful!!!!
Next: I want to make an atrium (where you put plants), in the bathroom downstairs. My sister Patty, has hers like that. Putting a piece of plywood over the tub and putting plants around it with the shower curtain drawn back.....But I have to wait until its warmer as Charlie said its too cold outside to cut the plywood to fit.
All this = to make our house 'sellable'....as much as I prefer staying here...it will make a little more of an impression on 'lookers'...and as long as we're here - we can enjoy it!!!!
I've had so much energy and I'm putting it to good use! Cleaning...organizing stuff, and even throwing away 'some' stuff too....
Early December we had a water leak in one of our 'tubes' in our waterbed. Granted it's about 20 years old or older....When I went to fix the bed I noticed the blankets were soaking wet and we found the leak in the tube on 'my' side of the bed. Years ago, Charlie had one on his side and we called to get a 'new' tube. When we were looking for the leak I noticed on the mattress (it looks like a shell) that there were spots of mold! Thank goodness we've had a 3 inch piece of foam over the mattress so were weren't in any danger mold related (I think)....We decided to get a new bed but we'd have to wait until after Christmas...with having the Christmas tree and decorations all over the house - it would have been hard to have them deliver the mattress and not knock anything down.
With 'that' in mind (a new mattress); while shopping at Sam's Club during December I noticed a pretty nice bed frame (top and bottom) and the cost was very reasonable...but I had my convertible and it was way too cold to buy it and bring it home with the top down.
I had mentioned to Charlie about this bedframe....and time went by....finally we decided to go and buy it one Sunday that he was home. When we arrived at Sam's Club we noticed that there were no more 'pick up' signs there and it was just the floor model that looked like a full/double size which wouldn't do. I decided to check out the mattresses while we were there...Walking to the back of the store, Charlie was looking UP to see if there were any 'display' model boxes around and he came across a cart with the entire 'set'!!! 4 boxes!!! ready to go!!! We thought it maybe another customers so I told him that we'd go pick up the dinner rolls that we also came in for and if it was still there when we got back - we'd take it. Well, taking our time and going back --- it was still there! Charlie took the cart and off we went to check out! He was walking ahead of me and I was a little behind -- just in case the original buyer saw us walking towards the cashier I'd say that I didn't know him! (nice of me!)....we got to the cashier and the woman ahead of us was griping about a product that was rung up with the wrong price (and we wanted to just pay and get out)....I told Charlie I was going to see the mark down on the Christmas stuff but he aggressively said 'NO'! A couple came up behind us and were talking about running into another couple and not knowing their names...but we thought they were going to complain about their bedframe....no.....now a gentleman came up to us and tapped Charlie on his shoulder - I was listening to this woman in front of me complaining....then Charlie poked me --the guy was asking what the price was - being that there was no ticket....I remembered the price from the first visit - wow! and here WE thought it was his!!! While he was asking us, the girl was ringing us up and charging us for each piece - duh, it's a set....anyway, we got it and RAN out of the store. I still wanted to go back to get the Christmas stuff but Charlie wanted to get out. We had one of the employees that was putting the carts away to help load the one piece of the bedframe....all in his truck! done!! and then he goes to put the dinner rolls in and the whole bag rips...about a dozen fell out and Charlie looked at me as if he wanted to pick them up....no way, the pigeons had more to eat!!! I was laughing hysterically the expression he had on his face when the guy asked the price....and his expression as we were running to the cashier and out the store....still thinking of it - I can laugh so hard!!! We finally got it home and in the garage. Paul helped Charlie bring it upstairs to Sam's room.
Now, noticing the carpet in our room - disgusting!!! spots all over the place....Years ago, when Paul was a baby - he threw up on it and of course stained the carpet....now with the dogs - just them laying on it made spots everywhere! So we decided that if we were getting a new mattress and bedframe we may as well get carpet....and paint the room.
I'm telling Charlie - that we need this to sell the house. The bedroom didn't look like a master suite...it was so messy....I had to change my original comforter because Marlee had chewed a corner of it when she was a pup and I just bought a regular comforter to make due at the time.
We ordered the carpet, and bought the paint. We kept it the original color; a very light green. We took EVERYTHING out of our bedroom as the carpet was coming on a Wednesday and the bed on Saturday. I had written down that the first paint took only 1 gallon. Charlie bought it at Lowe's and we both painted. Of course we ran out of paint only having a small portion left. He was off Monday and Tuesday, so we went back to Lowe's on Tuesday to buy another gallon.....came home and painted the rest of the room - touching up a fairly large area where our pillows were. Charlie had to go to some seminar that night and came home after 10 pm.....I came up to the bedroom to get ready for bed about midnight and noticed the area on the wall where he touched it up....uh oh...the paint didn't match!!! He came up and noticed that he bought the wrong type. First was ' matte finish' and the replacement was 'eggshell' - same color but noticeably different!!! Here we were = 1 AM in the morning RE-painting the whole wall!!!! We had to do it then because the carpet was coming the next morning!
Here we had all our furniture on the loft and in the hallway to the kids bedrooms! Such a mess!! We were sleeping in Sam's room. Her bed is so hard!!! I couldn't sleep the first night so I decided to sleep downstairs on the floor in the living room with the pellet stove rather than in my Mom's bedroom as the cat sleeps on her bed and I'd be sneezing all night....the floor was not comfortable at all...the next night I decided to sleep in Sam's bed rather than the floor.
Carpet guys came and went...arrived here about 8 AM and left by 1 PM....wow, it looked so nice! The carpet guy said it was pretty bad! After all this carpet has been down for 27years!!!! He really said it was pretty gross!!!
Thursday we brought the bed frame in and Charlie began to 'sort' out all the pieces. Friday he figured he'd put it together...again, another outing for him - had to go to the chiropractor so we didn't finish putting it together. The mattress was to be delivered between 12 noon and 4 pm, so we had more than enough time in the morning to put it together.
8AM I woke up and shook Charlie telling he that we should put the frame together....he said it would only take a few minutes so we could wait....well, not 5 minutes later the phone rings and they were delivering another mattress in Blairstown and asked if they could bring ours now....YIKES!!! We both jumped out of bed and began putting it together....I had to move my car and it was done about 10 minutes before they arrived!!! This bedframe has everything screwed in...headboard, sideboards and bottom frame all connected to the dividers in the middle.
When they left, we began bringing in the furniture. Dusting and cleaning it all before bringing it in the nice clean carpet! We were finished about 4 PM...exhausted!!! But it looked so nice.
Several years ago I had bought a new comforter set. I was going to put it on our bed but we had just gotten Marlee and I didn't want to do it seeing what she did to the older comforter set and due to our bed being a platform - it was hard to get the sham on...so it was put away; and used now!!!
After the room was put together I thought the windows needed something....off to Walmart for valances....got them and 7:30 AM the next day, I was washing screens and windows and putting up the new window treatments.
I love the way our room looks now!!!
So much cleaning to do!!! Dust everywhere from when Charlie put in the pellet stove - the hearth...with cutting the wood and putting down the tiles....so I had to dust off the bookshelves.
During all this, I cleaned Paul's bedroom. I took out his bookcase (that had a ton of t-shirts) in it and placed them all in his closet. Paul takes after me - can't throw or give anything away!!!! so I found another place for all of them. I moved the bookcase into my bathroom and am using it as a linen cabinet. I bought baskets to put the stuff inside so it looks 'clean and organized' (of course I can't find anything even though I tried to keep things somewhat together). I moved his shoe racks and just made his room neater!!! Sam's room is done...I put a few flower arrangements in there. She already had a wall unit in it that has her TV and other things...HER room looked more like the master suite than ours DID....now ours is beautiful!!!!
Next: I want to make an atrium (where you put plants), in the bathroom downstairs. My sister Patty, has hers like that. Putting a piece of plywood over the tub and putting plants around it with the shower curtain drawn back.....But I have to wait until its warmer as Charlie said its too cold outside to cut the plywood to fit.
All this = to make our house 'sellable'....as much as I prefer staying here...it will make a little more of an impression on 'lookers'...and as long as we're here - we can enjoy it!!!!
Subscribe to:
Posts (Atom)