Thursday, October 9, 2014

Thursday, October 9, 2014

Just wanted to blog...nothing important but figured - what the heck.....

I went for my usual 3 week follow up on Tuesday. My appointment was scheduled for 10 am. It takes me 35 minutes to get there...when I arrived I asked the receptionist how long I'd be waiting...she said about an hour. Doable since the last visit I waited two hours. I sat down with my Kindle and waited. There was a women next to me - waiting...she was there about 20 minutes ahead of me. Patients walked in, checked in, sat down and then were called in BEFORE the other woman and me! She got up to make sure they knew she was there - so I figured they knew I was waiting too! Waiting, and still waiting. A woman came in with her friend and said the longest she's ever waited was ten minutes - and then she was called to go in. (she does have a different oncologist)....THREE (3) hours later!!!! I was called in!!!

So frustrated!!!! As calm as I was, I thought my blood pressure was going to be sky high! but it was normal! then the nurse came in and asked the same questions she always does...then Dr. May came in and they all apologized -- what do you say! Man oh man, did I want to say something rather than smiling and saying 'it's okay'....has to be the receptionist that schedules these appointments!!!! Got home at 1:30 then ran to the A&P to get my 5% senior discount (only on Tuesday's).

When I left the office I looked over to the receptionist and held up three fingers....she shook her head, rolled her eyes (with an apologetic eye) and turned away. When I call for my next three week follow up I will tell the girl that gives me my appt. that I will only wait 1 hour. If I am not taken - I will walk out! Wonder how that will go over!!!

It was a busy day, leaving the house at 9:20 and coming home after 1:30. Then running out the door again.

All is well, my CBC and rest of blood work is fine and Dr. May checked my lungs. She suggested I have a bone density scan as this new hormone pill (for breast cancer) has symptoms of joint pain. She wants to make sure I don't have or wants to know the score for osteoporosis. As there is some bone loss with this pill. I'm scheduled for the 21st. This is different than the bone scan I had about a month ago...but you think THAT scan would show bone loss.....maybe it's just the money they want!!! Thank God we have good health insurance that covers these tests!

All is well. God is good! Prayers are good too! and I thank you for them!!!

Thursday, September 18, 2014

it's been a long time --- September 18, 2014

sorry for not blogging sooner.

I had a few issues that I had to deal with and I heard - don't claim you have cancer...so not sure of what was going on, I decided to wait until I had something to say.

Imagination is the best thing!!!

My CEA levels had gone up from 18 to 928 in the last several months. I had a PET scan back in June and it didn't show anything new and what I had did shrink. Then it went up again- testing it twice...

Imagination -- while I had the PET scan - for 45 (or so) minutes I prayed...prayed really hard. So hard that I felt I saw Jesus standing by my legs - healing me. I got a chill! Then the report was good.

When the CEA level went up again, Dr. May wanted me to go for a whole body bone scan. An easy test - I had it done at the hospital - went in at 9:30 to get the 'radiation' shot then back in three hours for the scan.

Imagination -- while being scanned they first have your arms at your side, then over your head, then anyplace. While I had my hands over my head - I felt Jesus standing right there besides me and holding my hand and I totally felt him right besides me....Imagination - what a wonderful thing! To have Jesus right there was such a feeling of joy.

I had this bone scan done last Thursday. Results were sent to Dr. May on Friday. I didn't hear from her and I didn't want to call. I think I just needed time. Feeling no news is good news. Of course everytime the phone rang my heart stopped! until I saw caller id. Dr. May had called me several weeks ago when my potassium was very low...so I figured she'd call if results weren't good....

Praying to God for healing works! But the human in me still seemed to worry until I asked God to take my worries from me - which did work....

My sister Linda and friend Donna - prayed! really prayed!!! and both of them got me through this.

I felt that God was/is healing me but there is always that tiny bit of doubt...Linda and Donna have kept me believing! Words of Joel Osteen helped too. Reading his postings on facebook seemed to always point to what I was fearing or needed to hear.

I for one can genuinely say that PRAYERS WORK!!! Don't ever doubt....believe. God loves us all!

The last few weeks I had heard several people that I know were healed, and then a great job opportunity, good health to others. I had a strong feeling that God was telling me - ALL IS WELL!

Be a believer!!! I truly am and so very thankful for prayers!!!! and God and Jesus!

Friday, June 27, 2014

Friday, June 27, 2014

Wow....I can't believe it's been so long since I posted! I have been asked several times but never did anything. sorry....

All is well!

I went for a PET scan on Monday the 23rd and found the results today (Friday). NO new lesions! I have a few hanging around and one that WAS active has shrunk and still being a little active. This I can handle!

About three weeks ago I found out that my CEA level had elevated almost 100 points higher than it was. Of course the first thing any human being does is - panic! Then I decided to check the internet.... I read and felt this was for me....that sometimes an active lesion/tumor dissolves and goes into your blood stream making the CEA (protein) level show higher....that and today I found out that anything can increase the number...being ill, coughing, stress....

Praying to God has really helped me too! This scan I prayed the entire time. Without anything else entering my mind and wandering off....I prayed so hard that I saw Jesus standing next to me with His hands raised over my abdomen healing me. It was such a beautiful feeling that I did shed a few tears!!!!

Finding that you only pray to God at the age of 64 is strange in itself! Here I thought you had to pray to saints! Any saint, all saints...but you don't have to. Go to the big guy!!! All the saints would have to relay the prayer to God! so you may as well go straight to the man!(or woman)....

I also heard that you should NOT pray to people that have passed! You can share memories with them but don't pray to them as they can't help you...they are busy doing God's work and can't help you.

I may sound a bit freaky...but when you have such great results and are open to receiving God - you will understand.

Sometimes I try preaching this to my kids but they aren't ready to hear it yet.

Charlie put the house on the market, again. I'm not ready to move and not sure if I'd really ever be ready. I enjoy seeing my kids on a weekly basis! I enjoy cutting hair!!! I have so many friends. I know you can make friends anywhere...but once you're away from your kids....they say they'd visit...but it would never be on a weekly basis. I'd be ready to move once one of them moves on...well, actually its easy for me to say that now...but I'm sure I'd have another excuse not to leave.

We had a few problems with SS...they said Charlie earned too much money last year (His first year collecting). They go monthly on the first year. He was very concerned on how much he made keeping an eye on his monthly earnings....but what I think happened is that he worked for Lowe's the entire year. Full time until he retired then he went part time. SS took his yearly income as part time. Their error!!!! So glad we found it and fixed it. It would have been a lot of money that we wouldn't have received for one month or at their suggestion, over a three year period!

Then,

yesterday, we get three (3) certified letters that we are being sued! I almost had to peel Charlie off the floor! I knew it was wrong. It was regarding a scan I got last June! and I had received a letter, then a few calls from a collection agency - which was supposedly fixed...until now....and due to my scheduled appointment today, I was able to get things straightened out. Seems that WE are the first EVER to get sued by the facility where I get my scans!!! again - THEIR error!

Charlie is planning on going to SC for a few days (to look at homes) then he and his sister Cathy will drive to see their Dad in Florida. I'm sure his Dad will be very happy to see both of them.

You can now consider yourself UPDATED! Again, if you don't see any new posts....everything is good!

Always remember: God will heal you! Ask or even demand that He heals you!!! He loves each and every one of us. Put your worries in His hands.

okay, done preaching too!

Thank you again, for praying to God for my healing!

Thursday, May 8, 2014

Thursday, May 8, 2014

Just wanted to let you all know, I have a NEW computer and NO email addresses! I'm waiting to get ALL my junk from my old computer BACK onto this one...so just in case you haven't received an email from me = this is why. Hopefully I do get them all back!

I'd like to WISH all of you Mom's a very Happy Mother's Day! To women that never bore children, you are still a mom to someone! To men that have raised their children while your wife is working, you are considered a mom! and anyone else that I missed = Enjoy your day!

I go see Dr. May on Monday and I figured as long as I'm in Sparta I'll do my 6 month check up with Dr. O'Shea (breast care specialist). They are both in the same building. As long as I don't have to wait too long to see Dr. May, I'll make it to my other appointment right on time!

I had 'decreased' the Xeloda pills this time - now taking a total of 3,000 mg per day. I eliminated two 150 mg pills (per day). I'm still a little tired. It takes me a while to do my chores. I have to sit for a minute before continuing. I have 'some' symptoms. My skin is very dry and peeling a little on my hands - it's really around my finger nails that is dry. My feet not only tingle but if I stand too long they hurt. I keep putting lotion on both (hands and feet).

Not sure if I said this in my last blog = my feet = when I have to explain the feeling....I feel like they are Clown Feet! those humongous shoes! A little comical but hard to explain in any other term.

Other than that = All is Well.

Take care = Enjoy life!

Wednesday, April 23, 2014

Wednesday, April 23, 2014

Happy Blessed Easter to All....a little late but God is always here for us and is showing us His miracles each day.

I went for my usual follow up visit with Dr. May yesterday. The only complaint I have is that you (I) arrive on time....but don't see the doctor for another hour! Nurses come in and take your vitals and your blood! and then you wait! Thank goodness I have my Kindle to keep me company! I usually play Word With Friends and I have one friend that is just about on all the time...so I'm always thinking of words to make! (thank you Barb!). My blood work (CBC) was very good.

This was my week off after increasing the dosage of my Xeloda by 1,000 mg each day. I did tell Dr. May my symptoms of which I tended to embellish a bit....I told her that my feet really hurt - especially as the day ends. They feel like a Clown's Big Feet! They do burn a little but it's bearable. Then I also told her my energy level has gone down....I do get tired a lot easier and it's noticeable to me. I find I need to sit after doing normal cleaning, laundry and other stuff. I was hoping she'd drop the dosage back to what it was but she said - one step at a time....She suggested we try to eliminate the 2 - 150 each mg. per day. So now I will take: 3 - 500 mg in the morning and at night = 3,000 mg rather than the 3,300 mg per day.

I can deal with the burning feet and tingling fingers but I don't like the energy level being so low. There are times that I don't even want to get up to prepare a meal....I'd rather just eat what is around = making me FAT! = eating junk food that I thought I'd never buy again....someone here is weeeeeeeeaaaaak!

Funny though, I did well on Easter....I did prepare grilled eggplant parmesan for Paul on Saturday as well as making the meatballs and sauce. On Sunday I made the stuffed shells, prepared my prime ribs and then made all the veggies and mashed potatoes....After sitting down to dinner (which was very late) I hated getting back up to clear the table and do the dishes. Thank goodness I had my kids help!

Nick was the only one that didn't have to work. Paul ended up helping Sam at the country club (as she was short some servers). They both arrived home at 7:30 with food on the table. Charlie had to work at Lowe's too, coming home about 6:15. Nicholas and I kept each other company.

I'm having computer problems! Seems I had two virus's and over 350 bugs! After cleaning it all up = my computer is running SLOWER!! so frustrating!!! Just getting onto Facebook takes forever and longer to post stuff! I posted some Easter photo's late last night and it took about 2 hours just to do that!!! I was ready to pull out my hair...well, not really but I was totally frustrated!

Charlie celebrated his birthday on Friday the 18th. He worked and then went bowling (his normal weekly thing)...WE (it was only the two of us) had his cake (I sung Happy Birthday) at 10:30 pm! With his bowling league on Friday's....seems every holiday fell on that day == our anniversary, Valentine's Day and his birthday! Thank goodness mine is on Thursday! Not that it really matters = it's just another day and I'm not one for going out.....another day, another year....I'm alive!

That kind of sounds depressing....but I'm not. I'm happy and loving this warmer weather. I even drove back from Sparta with my convertible top down yesterday! I love my car!

That's my update for now - if you don't see anything - everything is okay! No news is good news!

Friday, April 4, 2014

12:43 AM - Saturday, April 5, 2014

Getting ready to go to bed but decided to sit here and type this....

Going to another facility to have a written report for a PET scan can be very confusing. Words used are so different and the meanings are sometimes hard to understand = good? or bad???

I didn't get a copy of this report until Dr. May handed it to me. She discussed it with me but just the highlights of it....

She was very happy with the results...but I didn't quite understand what this report meant? Was I completely healed?

YES, NO signs of breast cancer! Healed!!! God healed me!

Now for the colon cancer....still not 100% sure....reading it over a few times I have come to the conclusion that the lesions are still there but it seems that only one is 'active'. Actually one lesion in the lung is completely gone....and the others have gotten smaller but they don't seem to be active, except for one in the liver.

Dr. May wants me to increase the dosage of the chemo pill - I'm thinking its because she wants to aggressively treat these lesions till they are completely gone. I begin my two weeks ON - Sunday...so I will increase the dose to three (3) 500 mg. and one (1) 150 mg in the morning and then the same at night = for two (2) weeks. I see her the week off and we will see if I have any symptoms.

The only symptom that is annoying is the upset stomach, running back and forth to the bathroom....this time it seemed to be every other day (and on my week off). It's doable but that's because I'm home....it scares me because I never know when I will feel this way.....and why do I let it scare me like this?!!!

God has His plan and it seems that He is healing me. I am staying positive because I do know that one day I will be completely healed!!! God loves us all and wants the best for all of us. I believe!!! I am an open vessel and accepting His words.

Thank you, again, for your continued support and prayers!

Wednesday, April 2, 2014

Wednesday, April 2, 2014

When I was growing up, I was so shy and hardly had anything to say....well, I sure did make up for lost time! I can talk about anything!!! And here is my platform on my PET scan....

Appointment scheduled for Monday, March 31st at Hackettstown Hospital (about a 20 minute drive). The day before a scan your not suppose to exercise = hmmmm, sure for the first time I wanted to work out and couldn't! and no sugar or fruit....just protein. I can do that = that's the diet I was on in November = when I went to the nutritionist....and fell off of it....

I left here at 8:05 AM - knowing that I had to register at the front desk of the hospital and not knowing what the parking lot would be like....I arrived 15 minutes early....

Registered and then walked down to the radiation department....I was to begin the scan about 9....

I had my Kindle with me (just in case I had to wait) but no wireless connection, so I just played solitare.

The woman I spoke with, I believe she is the receptionist...walked in about 10 minutes later saying she was stuck in traffic....no problem....

With this scan, they inject you with this 'stuff' and you have to sit quietly for 50 minutes....well, here I am = still sitting!

The delivery of the 'stuff' was late!!! They didn't arrive until 9:45!!! All that sitting and I wasn't going to get out of there until noon!

They have this really nice resting room. A little water fall fountain, candles and soft lights = NO kindle! No mental stimulation...just sit back and recline for 50 minutes.

My body told me when time was up....I had to go to relieve my bladder so bad and it was perfect timing! Then into get the scan!

Twenty minutes later...I was back out in the waiting room, waiting for the CD to bring on Friday.

Karen (receptionist) was very nice, handed me some water and crackers while I waited.

I asked the technicial when Dr. May would get the written report. He said she should get it in two or three days = which would be perfect for me --- she should have it on Friday and I will know what's going on inside my body.

I believe that God has healed me! I am very anxious to hear the news!

That's my story for the day.....always waiting.....for something......