Friday, April 4, 2014

12:43 AM - Saturday, April 5, 2014

Getting ready to go to bed but decided to sit here and type this....

Going to another facility to have a written report for a PET scan can be very confusing. Words used are so different and the meanings are sometimes hard to understand = good? or bad???

I didn't get a copy of this report until Dr. May handed it to me. She discussed it with me but just the highlights of it....

She was very happy with the results...but I didn't quite understand what this report meant? Was I completely healed?

YES, NO signs of breast cancer! Healed!!! God healed me!

Now for the colon cancer....still not 100% sure....reading it over a few times I have come to the conclusion that the lesions are still there but it seems that only one is 'active'. Actually one lesion in the lung is completely gone....and the others have gotten smaller but they don't seem to be active, except for one in the liver.

Dr. May wants me to increase the dosage of the chemo pill - I'm thinking its because she wants to aggressively treat these lesions till they are completely gone. I begin my two weeks ON - I will increase the dose to three (3) 500 mg. and one (1) 150 mg in the morning and then the same at night = for two (2) weeks. I see her the week off and we will see if I have any symptoms.

The only symptom that is annoying is the upset stomach, running back and forth to the bathroom....this time it seemed to be every other day (and on my week off). It's doable but that's because I'm scares me because I never know when I will feel this way.....and why do I let it scare me like this?!!!

God has His plan and it seems that He is healing me. I am staying positive because I do know that one day I will be completely healed!!! God loves us all and wants the best for all of us. I believe!!! I am an open vessel and accepting His words.

Thank you, again, for your continued support and prayers!

Wednesday, April 2, 2014

Wednesday, April 2, 2014

When I was growing up, I was so shy and hardly had anything to say....well, I sure did make up for lost time! I can talk about anything!!! And here is my platform on my PET scan....

Appointment scheduled for Monday, March 31st at Hackettstown Hospital (about a 20 minute drive). The day before a scan your not suppose to exercise = hmmmm, sure for the first time I wanted to work out and couldn't! and no sugar or fruit....just protein. I can do that = that's the diet I was on in November = when I went to the nutritionist....and fell off of it....

I left here at 8:05 AM - knowing that I had to register at the front desk of the hospital and not knowing what the parking lot would be like....I arrived 15 minutes early....

Registered and then walked down to the radiation department....I was to begin the scan about 9....

I had my Kindle with me (just in case I had to wait) but no wireless connection, so I just played solitare.

The woman I spoke with, I believe she is the receptionist...walked in about 10 minutes later saying she was stuck in problem....

With this scan, they inject you with this 'stuff' and you have to sit quietly for 50 minutes....well, here I am = still sitting!

The delivery of the 'stuff' was late!!! They didn't arrive until 9:45!!! All that sitting and I wasn't going to get out of there until noon!

They have this really nice resting room. A little water fall fountain, candles and soft lights = NO kindle! No mental stimulation...just sit back and recline for 50 minutes.

My body told me when time was up....I had to go to relieve my bladder so bad and it was perfect timing! Then into get the scan!

Twenty minutes later...I was back out in the waiting room, waiting for the CD to bring on Friday.

Karen (receptionist) was very nice, handed me some water and crackers while I waited.

I asked the technicial when Dr. May would get the written report. He said she should get it in two or three days = which would be perfect for me --- she should have it on Friday and I will know what's going on inside my body.

I believe that God has healed me! I am very anxious to hear the news!

That's my story for the day.....always waiting.....for something......

Monday, March 24, 2014

Monday, March 24, 2014

What a day!!! On the phone practically all morning!!!

When I saw Dr. May on the 14th of this month she said I was 'finally' approved for a PET scan....being on the chemo pill for two weeks, I had plenty of time to make my appointment. This week is the second week so I decided not to wait until the end or middle of this week to schedule the scan.

I called Newton Imaging (the same building as the cancer center)....come to find out that their PET scan machine is broken and has been for a month!!!! with NO sight for it to be fixed right now....

first call AFTER speaking with Newton Imaging = to the doctor's office = where do I go now? Morristown, Dover....what about Hackettstown (so much closer)...yes, they will do it there BUT you have to call your insurance co. to ask them to change the site for this scan...

second call: called insurance co.....NO, you have to call the Hackettstown Hospital to have them agree to doing this scan.

third call: called the hospital = NO, I have to call the insurance co. back OR the doctors office and tell them that we have ANTHEM blue cross/blue shield and not Horizon....

forth call: called doctors office - we know you have is the authorization number, call back the hospital and give it to them.

fifth call: called hospital and made the appointment for the scan = Monday, March 31st at 8:45 AM....BUT I still have to get the authorization number from the doctors office. I also need to go to Sparta to pick up the CD of my last scan (so they can compare it with this new scan). I can leave with the 'new' CD....wonder how long it will take to get a written report?!!! I wonder if they will fax a copy to Dr. May or if it needs to be read by the radiologist in Sparta (Newton Imaging).

sixth call: called doctors office and got the authorization number - which ended up missing one number (finding out after I made the seventh call).

eighth call: called doctors office and ended up leaving a message and asking her to call me back knowing all this was call back!!!!

So....I have an appointment for a pre-authorized PET scan at Hackettstown Hospital on Monday, the 31st. I will go home with the CD and bring it to Dr. May's office on Friday the 4th of April....UNLESS she wants it brought to her office BEFORE my follow up on the 4th.

All this....and I'm still not sure if the hospital will get all this information....I'm sure it will be okay...I would just like to know ahead of time.

I had all this information on scraps of note paper - hoping I'd remember what to say to whom!!! and see what the next step was....

All this time on the phone and I was so surprised that no one tried calling here!!! I think I would have gone just a little crazy if someone tried calling!

God does work in mysterious ways!!!!

Thanks for listening!!

Next update will be AFTER I find out the results of the scan.....

Tuesday, March 18, 2014

Tuesday, March 18th

When people ask why I haven't posted in a while, I was asked to say the following:

THERE AIN'T A FRIGGING THING TO SAY LOL.....and Believe in Miracles

quoted from an 'old' friend....John O'Toole..........

Friday, March 14, 2014

Friday, March 14, 2014

Always remember = no news is good news.....especially when I don't post on a regular basis.

All is well. Just came back from seeing Dr. May = on my 'week off' the chemo pill. Had blood drawn and everything is good.

FINALLY got approval to have a PET scan!!! I will call on Monday to make an appt. I will go on my next 'week off' which brings me to the first week in April.

Nothing else new.....prayers are working so I don't have bad symptoms. I have the occasional bout of diarrhea and still the tingling in my hands and feet - but nothing to complain about.

The only thing that I'm upset about is since the end of November I have gone off the 'good' foods and can't seem to go back.

The end of November when we had problems with our well, we weren't able to use the running water in our house. Which I gave up trying to wash the fresh seems to have taken a little over 2 weeks to be able to use our water and that's when I began eating my regular diet. I have gained back all that weight I lost...and I keep trying to go back....breakfast is good, but then I begin snacking about 10 minutes after I finished eating really healthy. If I could only continue = I'd be fine! I guess or maybe I'll just blame it on Paul. When he is/was around = I'd eat good...with him being away = no incentive. Charlie, on the other hand, is doing great! He works out everyday/night! He's looking good! All the weight he's taking off = I'm putting on.

Okay, now I'm done complaining!

Thanks again for your prayers! and continued support.

Sunday, February 16, 2014

Sunday, February 16, 2014

About a half hour before Shameless goes on and I finally decided to sit down and type this....

This is my week OFF....two weeks on, one week off = the chemo pill.

Feeling symptoms this round.

I still have some tingling in my feet and I think I now have plantar fasciitis...heel pain. I bought a pair of heel cushions and it seems much better. It's an inflamation of your heel mostly from standing a lot (which I do). I keep moisturizing my hands with lotion and under my finger nails (seems that is where the skin is the dryest). Other than that, I have my energy and appetite.

I have an appointment with Dr. May and blood work on Friday.

I WAS suppose to go for a PET scan this week but it seems that my insurance company DENIED it. The office called to say that I was now to schedule a Nuclear Imaging Bone Scan (at the hospital) and then have a CT Scan at Sparta. I called to make the appt. for the bone's for Wednesday at 10 am = I go for the radiation injection at 10 am - then I can leave or stay but need to be back 3 hours later for the 1 hour scan! Are you kidding me?!!! I made this appt. on Friday about 2 pm. I was home alone and completely lost it! So totally frustrated that I have to have 2 scans on two different days and see the doctor on Friday! Plus it's having all this crap injected!!!

After I calmed myself down, I decided to call the insurance company directly. They said it was denied due to the doctor not giving all the information needed. She can call again and re-apply for this PET scan. I was happy with that answer. I called the office and got the answering machine. Here it was about 2:30 and they leave at 4 == had no call back. Now dwelling over this the entire weekend, first thing tomorrow I will call the office to set this ONE scan up!!! Guess nothing will happen this week = so I'm sure it will be in 3 weeks = which is fine with me. As long as Dr. May agrees with this and doesn't pressure me to go for these two scans. Not that the PET scan is any better = but it's just ONE scan and being injected with radiation once! The PET scan gives bone density information.

What blows my mind = if the insurance company declines one scan for the with two scans it would cost more! Really?!! Is the doctor trying to make some kind of point with the insurance company??? Is this related to Obama Care???? = heck, it's all a conspiracy!!!! LOL Guess you have to find some humor in all of this.

I do a fair amount of 'channel surfing'....I've watched before but I don't know the actual schedule = Joel Osteen. He totally amazes me. He gets me so uplifted by what he speaks about. I've caught his show twice....his first one was 'telling' God, the Lord, to heal me! He said God wants good for all of us and we have to be persistant and stong to 'tell' Him what we want. Today Joel Osteen was talking about 'timing'...why is it when we ask for something it doesn't happen tomorrow....God has a plan. He knows what and when you will receive it. It may take a day, month, years...and in that time you will find what you were asking for...or someone that you meet that takes you to achieve your intention. I've always known, deep down, that God brings people into your life for a reason. If you ever get a chance to see or listen to Joel Osteen - do, I'm sure you'll be totally impressed and uplifted by his speeches.

Other than this beautiful weather we are experiencing - life is great! As I shake my head in disbelief....more snow expected Monday night into Tuesday. We have so much snow and no place to put what is being plowed! and when the warmer weather comes to melt it...and being cold at night = what melts turns into black ice! No winning here = at least for another month! We need several days of warm weather along with rain = to wash it all away....and most likely into the houses = houses with basements! and into houses that have no basements.

Charlie was up on the roof (one roof over the screened in porch and where the pool table is) shoveling off the heavy snow. The rest of the roof is angled enough that it will eventually slide off. speaking of which = outside the upstairs deck is a chunk of snow that will be an avalanche!!!! when the door is open. Charlie said he will shovel it off tomorrow = unless all the snow falls on top of him when he begins shoveling!!! = I'll have my camera that's my weird sense of humor - watching it happen!

Poor dogs are having a hard time finding a place to 'do their thing'. Jersey went next door to go = under their trampoline! She and Marlee were outside and I called them to come in. Marlee came but Jersey didn't. I had to put my coat and boots on to find her. Here I thought she was trapped in snow! I saw her struggling to come back home. I figured if she got there = she could get back....all this happened while it was snowing yesterday and Charlie was at work. I was ready to call him to come home = if she was stuck someplace there would be no way that I could get her out...thank God she was okay.

the end....

Tuesday, February 4, 2014

Tuesday, February 4, 2014

Wow...I didn't realize it's almost a month since my last blog.

I've been on my chemo pill for a few months now...After my radiation treatments Dr. May increased my dosage to 2,300 mg of Xeloda. 3 pills in the morning and 3 at night - for two weeks then one week off. On my off week I go to the center to have my blood checked and speak with Dr. May.

Everything is going fine....blood work is good/excellent! I have a few symptoms: tingling in the hands and feet and my heels hurt a little. I do have the occasional bout of diarrhea...just comes on when it wants rhyme or reason.

I actually feel very well. No hair loss, my skin is good, no mouth sores, no finger cuts, lots of energy too.

I will have a PET scan the week of the 17th of this month.

I truly believe I will conquer this disease...I know God can heal me, if it is His will.

The thing is miss is being able to shovel! Having this port (in my chest) means that I can' was enjoyable for me as I got my exercise and fresh air! and my driveway was clear, edge to edge!!! We do have our driveway plowed but there is still clean up that needs to be done.

I can't believe all the snow we are having this year!