Made it to the A&P....and just back in time!!!! Paul is so funny....he gets so nervous when I 'fly' down the side roads....sorry to say but I was going 50 mph in a 35 mile zone....The eruption was beginning.
Other than that...I've been feeling pretty good...still a little tired....my face is broken out too but not really noticeable, my scalp is a bit itchy but not all that bad.
Tomorrow I go for blood work.
Sam and Charlie arrived about noon time and when I last spoke with them they were moving her things in. Charlie said her bathroom is a total mess! Sam called and they will be by tomorrow to fix and clean it....glad I didn't go!!!
Slept really well last night, only got up once, about 5:30 which is unreal for me! then took the dogs out, emptied the dishwasher and back to bed....about 8:45 Marlee decides to climb in bed with me...she is so cute...she puts her head on the edge of my bed - I didn't show her that I was aware she was there....the next thing - she's s-l-o-w-l-y inching her way up to my pillow....she made it and I got up and yelled at her - like she heard me?! NOT....she just either wanted to be in bed with me - or make me get up! Sam called a few minutes earlier so I was up (kind of).....what a character!!!
Tuesday, July 31, 2012
Sunday, July 29, 2012
Sunday, July 29th
Well the chemo kicked in and decided it wanted 'out' of my body! Played 'bout with the bowl' today.....Thank goodness no one was home at the time....Nick came home shortly afterwards.
This really knocks me for a loop....I get so tired. Nick made dinner tonight: flank steak, potatoes and veggies.....I couldn't get myself to eat anything while Nick and Charlie ate. I did eat some steak about 8 pm...left the rest for Samantha.
Watched Real Housewives of New Jersey - I don't know why I do this to myself....it's such a strange show...everyone always finds something/someone to complain about! They are never happy! I did enjoy seeing them in an RV...especially in a parking lot - no grass!!!
Sam is going back to school Monday night....she's really looking forward to seeing her 'new' friends again...she is so nervous...about packing her car...she's so afraid she won't have room to put everything in....
This really knocks me for a loop....I get so tired. Nick made dinner tonight: flank steak, potatoes and veggies.....I couldn't get myself to eat anything while Nick and Charlie ate. I did eat some steak about 8 pm...left the rest for Samantha.
Watched Real Housewives of New Jersey - I don't know why I do this to myself....it's such a strange show...everyone always finds something/someone to complain about! They are never happy! I did enjoy seeing them in an RV...especially in a parking lot - no grass!!!
Sam is going back to school Monday night....she's really looking forward to seeing her 'new' friends again...she is so nervous...about packing her car...she's so afraid she won't have room to put everything in....
Saturday, July 28, 2012
Saturday, July 28th
So far, so good....no itchy scalp last night...well, a little but it didn't keep me up. Other than going to the bathroom every hour or two, I slept well! My face is a little dry and flaky - but I can live with 'that' symptom - I just use more moisturizer!
I was able to 're-schedule' my scans at MSK in Basking Ridge rather than going into the city. I will have them done the end of next month...giving me a total of 4 chemo treatments...then the week after I go to the city to meet with Dr. Kemeny to hear the results....actually, I would like to know what they are ahead of time - so I can collect my thoughts and have questions ready for her. I will email her in regards to 'my request'.
Dr. May will be on vacation for my next treatment so I will meet with Dr. Halabe (spelling???), I had seen him once before while Dr. May was on vacation and that's when my face had broken out....poor guy...having to deal with me! When I was leaving the office yesterday - we (me and the two doctors) joked about it. I'm so happy they have a sense of humor! I have to go back on Wednesday for blood work....this going back and forth is a real pain! Oh well, if that's all I have to complain about...that's good!
Charlie is working today, Paul is out and maybe home tonight, Sam is going to the gym and then to work....
I was able to 're-schedule' my scans at MSK in Basking Ridge rather than going into the city. I will have them done the end of next month...giving me a total of 4 chemo treatments...then the week after I go to the city to meet with Dr. Kemeny to hear the results....actually, I would like to know what they are ahead of time - so I can collect my thoughts and have questions ready for her. I will email her in regards to 'my request'.
Dr. May will be on vacation for my next treatment so I will meet with Dr. Halabe (spelling???), I had seen him once before while Dr. May was on vacation and that's when my face had broken out....poor guy...having to deal with me! When I was leaving the office yesterday - we (me and the two doctors) joked about it. I'm so happy they have a sense of humor! I have to go back on Wednesday for blood work....this going back and forth is a real pain! Oh well, if that's all I have to complain about...that's good!
Charlie is working today, Paul is out and maybe home tonight, Sam is going to the gym and then to work....
Thursday, July 26, 2012
Thursday, July 26 - chemo #2 - day 1
I began typing this morning about 8:30...wrote alot and didn't save as I was going along my merry way...and all of a sudden - lost it...no power! and not saved! oh my...to do it again? Guess I will now do a shorter version....If I can manage that!
Went to bed last night at 1:11 am...and had a great, almost, 2 hours of sleep...no dreams, no plumbs dancing in my head, nothing...like I was comatose!!! then I woke up...for no reason....couldn't fall back to sleep until 4:30 and woke up about 35 minutes later, with Marlee trying to get onto the bed - my side - while I'm hooked up to this pump!!! this happened once before while I was connected to the pump. I put the 'unit' in my night stand drawer and the 'line' hangs from there to my port...I was so afraid when she jumped onto me/bed she was going to break the line...then I'd have all that toxic chemo drug on the floor, bed, dog and me....Charlie jumped out of bed - running around to my side and Marlee got down.....the thunder hadn't begun yet....Marlee went to lay at the top of the stairs....and began barking. She and Jersey never bark at night, even when the kids come home late or early morning...so again, Charlie is out of bed and going downstairs...why??? he wouldn't let the dogs out...I ended up getting my eye glasses and going out to the upstairs deck...remembering this is only 4:45 ish and still pitch black outside - can't see a thing! Everyone is settled in again...and now I'm wide awake!!! but I layed down and fell asleep - UNTIL...6:15 ish....then the thunder began and Marlee tryed to get ontop of me - again! This time I put the garbage pail next to the spot of 10 inches where she tried to get in and I had my pump right next to me...of course where she tried to get on the bed - the pump was right there....UP again!!! I decided I couldn't fall back to sleep and thinking that this storm was going to get worse, I'd blog....well, I did and like I mentioned before, I didn't 'save' it...so I lost it all when the power went off...for about 2 minutes!!! Went back to the bedroom and there was Marlee...on my side of the bed - cuddled up next to Charlie!!!! then downstairs to the basement she went and is still there!
Sam had made me breakfast yesterday before chemo...french toast on white bread...just the way I like it...but I didn't have an appetite....so I only had half of two pieces.....when I came home I had half a turkey sandwich with left over potato salad and two lemon squares...and for dinner Paul made me french toast on Italian bread - presentation grade: 100%....delicious too! Sam was going to the Truck Stop by PA to buy some novelty Jersey items to bring back to school and knowing that McDonald's is right there....I had a craving for salty french fries....hmmm- french food?!! - she hates McDonald's - the smell..but she was sweet enough to get me a small size....soooo good!!!
While Sam was out....Paul was up stairs in his room...the dogs were with me....Jersey and I heard a noise outside but didn't think anything of it...then it happened again...I yelled to Paul to look out his window - garbage night....yep, a bear was trying to get into our well sealed garbage can! Couldn't do it...but Paul scared it away. While Paul was at his window, I opened one of the windows in the big room - if you know what those windows look like - they are low to the ground but not very wide....I couldn't see anything and then the dogs went wild....the bear, according to Paul was fairly large and scooted off to the back yard. of course the dogs wanted out but no way...they would have gone after the bear - wherever it was....Sam ran into the house when she got home - especially holding these great smelling fries! Charlie came home and went out with the dogs...bear gone!
so, right now, being a little tired I feel good, my head itches a little...my nose stopped running, I don't think I'm having anymore hot flashes - so how I felt yesterday after coming home = all seems fine now....I go tomorrow (Friday) to have my pump disconnected. I don't need a nupagin shot because my WBC levels are still okay..I'm sure I will have to go next time....but that's another day to worry about in two weeks!
I thought this would have been short and sweet...but I ran off again....at least this time it was a fairly good, happy read.....
Went to bed last night at 1:11 am...and had a great, almost, 2 hours of sleep...no dreams, no plumbs dancing in my head, nothing...like I was comatose!!! then I woke up...for no reason....couldn't fall back to sleep until 4:30 and woke up about 35 minutes later, with Marlee trying to get onto the bed - my side - while I'm hooked up to this pump!!! this happened once before while I was connected to the pump. I put the 'unit' in my night stand drawer and the 'line' hangs from there to my port...I was so afraid when she jumped onto me/bed she was going to break the line...then I'd have all that toxic chemo drug on the floor, bed, dog and me....Charlie jumped out of bed - running around to my side and Marlee got down.....the thunder hadn't begun yet....Marlee went to lay at the top of the stairs....and began barking. She and Jersey never bark at night, even when the kids come home late or early morning...so again, Charlie is out of bed and going downstairs...why??? he wouldn't let the dogs out...I ended up getting my eye glasses and going out to the upstairs deck...remembering this is only 4:45 ish and still pitch black outside - can't see a thing! Everyone is settled in again...and now I'm wide awake!!! but I layed down and fell asleep - UNTIL...6:15 ish....then the thunder began and Marlee tryed to get ontop of me - again! This time I put the garbage pail next to the spot of 10 inches where she tried to get in and I had my pump right next to me...of course where she tried to get on the bed - the pump was right there....UP again!!! I decided I couldn't fall back to sleep and thinking that this storm was going to get worse, I'd blog....well, I did and like I mentioned before, I didn't 'save' it...so I lost it all when the power went off...for about 2 minutes!!! Went back to the bedroom and there was Marlee...on my side of the bed - cuddled up next to Charlie!!!! then downstairs to the basement she went and is still there!
Sam had made me breakfast yesterday before chemo...french toast on white bread...just the way I like it...but I didn't have an appetite....so I only had half of two pieces.....when I came home I had half a turkey sandwich with left over potato salad and two lemon squares...and for dinner Paul made me french toast on Italian bread - presentation grade: 100%....delicious too! Sam was going to the Truck Stop by PA to buy some novelty Jersey items to bring back to school and knowing that McDonald's is right there....I had a craving for salty french fries....hmmm- french food?!! - she hates McDonald's - the smell..but she was sweet enough to get me a small size....soooo good!!!
While Sam was out....Paul was up stairs in his room...the dogs were with me....Jersey and I heard a noise outside but didn't think anything of it...then it happened again...I yelled to Paul to look out his window - garbage night....yep, a bear was trying to get into our well sealed garbage can! Couldn't do it...but Paul scared it away. While Paul was at his window, I opened one of the windows in the big room - if you know what those windows look like - they are low to the ground but not very wide....I couldn't see anything and then the dogs went wild....the bear, according to Paul was fairly large and scooted off to the back yard. of course the dogs wanted out but no way...they would have gone after the bear - wherever it was....Sam ran into the house when she got home - especially holding these great smelling fries! Charlie came home and went out with the dogs...bear gone!
so, right now, being a little tired I feel good, my head itches a little...my nose stopped running, I don't think I'm having anymore hot flashes - so how I felt yesterday after coming home = all seems fine now....I go tomorrow (Friday) to have my pump disconnected. I don't need a nupagin shot because my WBC levels are still okay..I'm sure I will have to go next time....but that's another day to worry about in two weeks!
I thought this would have been short and sweet...but I ran off again....at least this time it was a fairly good, happy read.....
Wednesday, July 25, 2012
Wednesday, July 25th - chemo #2
Arrived home about 4 pm....left here at 10:15 - scheduled appt was 10:45....waited in the lobby as there were way too many people in the waiting room for 'only' 45 minutes!
I spoke with Dr. May 'before' this treatment - about my scalp issue...she thinks it is a symptom of the chemo - and being in the sun....now, if you all know me - I hardly go outside! I do drive with the top down - and get sun then...but I am very rarely in the sun - not that I don't like it...it's just too hot! She suggested wearing a hat whenever I go out.
I was fine going to bed last night - about 4 am I woke with my head tingling! and unbearable! I finally got up at 7:30....When I shampooed this morning I used the Epsom salt 'rinse', then shampooed, then used a conditioner...so far it feels better.
Dr. May suggested that I use either an ice pack or wet a towel and freeze it - then put it on my head while I sleep....I will try anything - if I can't sleep tonight!
The one chemo drug was lowered 20% - that may help with the puffy eyes too....
So far, my mouth is salivating a little, hot flashes, runny nose, and sweaty palms....I won't complain about carrying this pump! who wants to hear me complain about that - again!
Samantha and I made Lemon Squares (recipe from a high school classmate) last night and I just ate two (2) squares....they came out pretty good for the first time....next time I think I need to add just a little more 'lemon juice'.....but they did 'hit the spot'!!! Thanks Ed and Susan!!!
Gee, didn't realize it's after 6 pm....I think I better go feed the doggies!!!
I spoke with Dr. May 'before' this treatment - about my scalp issue...she thinks it is a symptom of the chemo - and being in the sun....now, if you all know me - I hardly go outside! I do drive with the top down - and get sun then...but I am very rarely in the sun - not that I don't like it...it's just too hot! She suggested wearing a hat whenever I go out.
I was fine going to bed last night - about 4 am I woke with my head tingling! and unbearable! I finally got up at 7:30....When I shampooed this morning I used the Epsom salt 'rinse', then shampooed, then used a conditioner...so far it feels better.
Dr. May suggested that I use either an ice pack or wet a towel and freeze it - then put it on my head while I sleep....I will try anything - if I can't sleep tonight!
The one chemo drug was lowered 20% - that may help with the puffy eyes too....
So far, my mouth is salivating a little, hot flashes, runny nose, and sweaty palms....I won't complain about carrying this pump! who wants to hear me complain about that - again!
Samantha and I made Lemon Squares (recipe from a high school classmate) last night and I just ate two (2) squares....they came out pretty good for the first time....next time I think I need to add just a little more 'lemon juice'.....but they did 'hit the spot'!!! Thanks Ed and Susan!!!
Gee, didn't realize it's after 6 pm....I think I better go feed the doggies!!!
Monday, July 23, 2012
Monday night, July 23rd
Just turned my computer back on...these thunderstorms that went through were pretty rough! Thank God we didn't loose power!!!
My scalp is still itchy! and it, kind of, hurts too....so much so that these last two nights were very hard sleeping! I think something is 'popping up' on my scalp....breaking out - at least it feels that way....feels a little better right now and hoping once my head hits the pillow it will be okay!
My tongue is a little tender/sore but not enough to stop me from eating. I did get my appetite back on or about Saturday. My eyes are a little puffy too...feels like I've been crying and a little itchy (feeling I get with allergies)...I've used my eyedrops and they don't help so I'm figuring it's a reaction to this chemo. I'm just surprised that it is coming out now and not last week.....It will be interesting to see if Dr. May uses the same 'formula' on Wednesday.
Charlie was off today....which makes me confused with what day it is....With him not being off on Sat. and Sun....then I really have to 'think' of which day we're on!!! His next day off is Friday.
Sam is getting ready to move back south, to school...she's trying her hardest to put the things she's going to bring back in one place....seems that she has three spots and I'm sure she'll forget something! She is so intent on going to the gym - working out - and working that she's got so many things on her mind.
My scalp is still itchy! and it, kind of, hurts too....so much so that these last two nights were very hard sleeping! I think something is 'popping up' on my scalp....breaking out - at least it feels that way....feels a little better right now and hoping once my head hits the pillow it will be okay!
My tongue is a little tender/sore but not enough to stop me from eating. I did get my appetite back on or about Saturday. My eyes are a little puffy too...feels like I've been crying and a little itchy (feeling I get with allergies)...I've used my eyedrops and they don't help so I'm figuring it's a reaction to this chemo. I'm just surprised that it is coming out now and not last week.....It will be interesting to see if Dr. May uses the same 'formula' on Wednesday.
Charlie was off today....which makes me confused with what day it is....With him not being off on Sat. and Sun....then I really have to 'think' of which day we're on!!! His next day off is Friday.
Sam is getting ready to move back south, to school...she's trying her hardest to put the things she's going to bring back in one place....seems that she has three spots and I'm sure she'll forget something! She is so intent on going to the gym - working out - and working that she's got so many things on her mind.
Friday, July 20, 2012
12:10 AM = Saturday, July 21
My appetite is back! I don't have that feeling of 'depression' or mood swings either! I do have 'some other symptoms'....mouth sores but they aren't bad, my face is breaking out, and my scalp is itchy! I don't get 'bad' stomach spams....but I do 'go'....
Dr. May did give me a script for the stomach spams but I don't think I need to take them yet. Probably next week when I go for chemo #2 (Wed., July 25)....she also gave me protonics (antacid) - that I will take in the morning....
I will take each day as it comes.....
This weather is so weird! So very hot and humid these last few days and now today, I had my shorts on and turned off the air....I was freezing! My feet were cold! I had to change into my pants - and put on socks! Tomorrow is suppose to be nicer and then the summer comes back.....I like to see the sun! The dogs love not having the air on...they can come and go - in and out of the house at their own convenience! Marlee just loves it! Jersey is a little more paranoid...she tends to bark at any 'new' noise and then runs out the door.....dogs!!! The cat loves staying out at night - even in the heat...she sleeps on the roof of my car (which has all this golden hairs on the black top - which some of it seems to be woven into the fabric!) She is calico and majority of her hair is black....but you can't see those hairs....only the golden ones!
Dr. May did give me a script for the stomach spams but I don't think I need to take them yet. Probably next week when I go for chemo #2 (Wed., July 25)....she also gave me protonics (antacid) - that I will take in the morning....
I will take each day as it comes.....
This weather is so weird! So very hot and humid these last few days and now today, I had my shorts on and turned off the air....I was freezing! My feet were cold! I had to change into my pants - and put on socks! Tomorrow is suppose to be nicer and then the summer comes back.....I like to see the sun! The dogs love not having the air on...they can come and go - in and out of the house at their own convenience! Marlee just loves it! Jersey is a little more paranoid...she tends to bark at any 'new' noise and then runs out the door.....dogs!!! The cat loves staying out at night - even in the heat...she sleeps on the roof of my car (which has all this golden hairs on the black top - which some of it seems to be woven into the fabric!) She is calico and majority of her hair is black....but you can't see those hairs....only the golden ones!
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