Wednesday, April 23, 2014

Happy Blessed Easter to All....a little late but God is always here for us and is showing us His miracles each day.

I went for my usual follow up visit with Dr. May yesterday. The only complaint I have is that you (I) arrive on time....but don't see the doctor for another hour! Nurses come in and take your vitals and your blood! and then you wait! Thank goodness I have my Kindle to keep me company! I usually play Word With Friends and I have one friend that is just about on all the time...so I'm always thinking of words to make! (thank you Barb!). My blood work (CBC) was very good.

This was my week off after increasing the dosage of my Xeloda by 1,000 mg each day. I did tell Dr. May my symptoms of which I tended to embellish a bit....I told her that my feet really hurt - especially as the day ends. They feel like a Clown's Big Feet! They do burn a little but it's bearable. Then I also told her my energy level has gone down....I do get tired a lot easier and it's noticeable to me. I find I need to sit after doing normal cleaning, laundry and other stuff. I was hoping she'd drop the dosage back to what it was but she said - one step at a time....She suggested we try to eliminate the 2 - 150 each mg. per day. So now I will take: 3 - 500 mg in the morning and at night = 3,000 mg rather than the 3,300 mg per day.

I can deal with the burning feet and tingling fingers but I don't like the energy level being so low. There are times that I don't even want to get up to prepare a meal....I'd rather just eat what is around = making me FAT! = eating junk food that I thought I'd never buy again....someone here is weeeeeeeeaaaaak!

Funny though, I did well on Easter....I did prepare grilled eggplant parmesan for Paul on Saturday as well as making the meatballs and sauce. On Sunday I made the stuffed shells, prepared my prime ribs and then made all the veggies and mashed potatoes....After sitting down to dinner (which was very late) I hated getting back up to clear the table and do the dishes. Thank goodness I had my kids help!

Nick was the only one that didn't have to work. Paul ended up helping Sam at the country club (as she was short some servers). They both arrived home at 7:30 with food on the table. Charlie had to work at Lowe's too, coming home about 6:15. Nicholas and I kept each other company.

I'm having computer problems! Seems I had two virus's and over 350 bugs! After cleaning it all up = my computer is running SLOWER!! so frustrating!!! Just getting onto Facebook takes forever and longer to post stuff! I posted some Easter photo's late last night and it took about 2 hours just to do that!!! I was ready to pull out my hair...well, not really but I was totally frustrated!

Charlie celebrated his birthday on Friday the 18th. He worked and then went bowling (his normal weekly thing)...WE (it was only the two of us) had his cake (I sung Happy Birthday) at 10:30 pm! With his bowling league on Friday's....seems every holiday fell on that day == our anniversary, Valentine's Day and his birthday! Thank goodness mine is on Thursday! Not that it really matters = it's just another day and I'm not one for going out.....another day, another year....I'm alive!

That kind of sounds depressing....but I'm not. I'm happy and loving this warmer weather. I even drove back from Sparta with my convertible top down yesterday! I love my car!

That's my update for now - if you don't see anything - everything is okay! No news is good news!

12:43 AM - Saturday, April 5, 2014

Getting ready to go to bed but decided to sit here and type this....

Going to another facility to have a written report for a PET scan can be very confusing. Words used are so different and the meanings are sometimes hard to understand = good? or bad???

I didn't get a copy of this report until Dr. May handed it to me. She discussed it with me but just the highlights of it....

She was very happy with the results...but I didn't quite understand what this report meant? Was I completely healed?

YES, NO signs of breast cancer! Healed!!! God healed me!

Now for the colon cancer....still not 100% sure....reading it over a few times I have come to the conclusion that the lesions are still there but it seems that only one is 'active'. Actually one lesion in the lung is completely gone....and the others have gotten smaller but they don't seem to be active, except for one in the liver.

Dr. May wants me to increase the dosage of the chemo pill - I'm thinking its because she wants to aggressively treat these lesions till they are completely gone. I begin my two weeks ON - Sunday...so I will increase the dose to three (3) 500 mg. and one (1) 150 mg in the morning and then the same at night = for two (2) weeks. I see her the week off and we will see if I have any symptoms.

The only symptom that is annoying is the upset stomach, running back and forth to the bathroom....this time it seemed to be every other day (and on my week off). It's doable but that's because I'm home....it scares me because I never know when I will feel this way.....and why do I let it scare me like this?!!!

God has His plan and it seems that He is healing me. I am staying positive because I do know that one day I will be completely healed!!! God loves us all and wants the best for all of us. I believe!!! I am an open vessel and accepting His words.

Thank you, again, for your continued support and prayers!

Wednesday, April 2, 2014

When I was growing up, I was so shy and hardly had anything to say....well, I sure did make up for lost time! I can talk about anything!!! And here is my platform on my PET scan....

Appointment scheduled for Monday, March 31st at Hackettstown Hospital (about a 20 minute drive). The day before a scan your not suppose to exercise = hmmmm, sure for the first time I wanted to work out and couldn't! and no sugar or fruit....just protein. I can do that = that's the diet I was on in November = when I went to the nutritionist....and fell off of it....

I left here at 8:05 AM - knowing that I had to register at the front desk of the hospital and not knowing what the parking lot would be like....I arrived 15 minutes early....

Registered and then walked down to the radiation department....I was to begin the scan about 9....

I had my Kindle with me (just in case I had to wait) but no wireless connection, so I just played solitare.

The woman I spoke with, I believe she is the receptionist...walked in about 10 minutes later saying she was stuck in traffic....no problem....

With this scan, they inject you with this 'stuff' and you have to sit quietly for 50 minutes....well, here I am = still sitting!

The delivery of the 'stuff' was late!!! They didn't arrive until 9:45!!! All that sitting and I wasn't going to get out of there until noon!

They have this really nice resting room. A little water fall fountain, candles and soft lights = NO kindle! No mental stimulation...just sit back and recline for 50 minutes.

My body told me when time was up....I had to go to relieve my bladder so bad and it was perfect timing! Then into get the scan!

Twenty minutes later...I was back out in the waiting room, waiting for the CD to bring on Friday.

Karen (receptionist) was very nice, handed me some water and crackers while I waited.

I asked the technicial when Dr. May would get the written report. He said she should get it in two or three days = which would be perfect for me --- she should have it on Friday and I will know what's going on inside my body.

I believe that God has healed me! I am very anxious to hear the news!

That's my story for the day.....always waiting.....for something......